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Bedlack might be collateral damage based on his stance. He was not asked to say it worked - how could he? Just to say it did not in his opinion seem like a scam. He was given info to show this fact. None of use has paid a dime ever. This treatment is not going to go away- I just wanted to be...

Nikki, I found them because I posted that anyone currently taking the drug please contact me. Then s couple of them invited someone they knew. No predisposition other than that. I didn't consider it brave, although my Dr was concerned, but I was dying anyway, if this could slow it great. I...

I did not say for all time! I am grateful for the so far. I take no supplements, or drugs of any kind. I have found 10 people on my own that are on it with similar results,some better, coincidence? I think not. Please don't put words in my mouth, or demean my Doctor.

I feel compelled to jump in here. First I pointed out to Dr. Bedlack some months ago that the untangled site was flawed, a person could vote an infinite amount of times in one sitting - helped him fix it. I have been taking RCH4 for 9 months, free. My ALSFRS score has virtually stabilized and...

Someone please tell me why they still have over 100 million in their accounts! It's a very close minded survey also.

GregK I suspect that the US ALS Association cannot give money to a Canadian effort I'm thinking they can do whatever they want with it. They have their own bylaws as a 501 charity. But them having that much is insane!

ALS Association USA still has over 100 million in their coffers, what are they waiting for? Even if this is funky, sounds like an inexpensive try. I say start giving money to deals like these, stop spending millions in fancy labs, messing with mice - I'm fed up with that. We aren't mice.

Nikki, I do know the NP001 Trial has supposedly been coming for quite a while, they are doing it outside the US. Also, it works on a subset of ALS patients - he can take a specific bloodtest to see if he is a More viable candidate. Good Luck!

I use a Trilogy, I was like Tom, didn't use it for a while, felt horrible to me. Got used to it to a point that I like it on for naps now too. Hopefully you will have someone competent enough to set the settings correctly for him - might take a few tries. It travels well, I went to Hawaii, took...

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