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    ALSA, ALS TDI, etc

    Hi, I have a question about ALS research, not sure if this is the correct place to ask. My husband was a DAV and passed away from ALS in 2015. I’m thinking about redoing my will and wanted to know what are good organizations that could benefit from donations in my will? I’ve heard that the ALS...
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    Handi Move ceiling lift question

    Hi. My husband died in July. The VA had installed a remote control ceiling lift for him, I am planning to donate it to a family that need it. I have had it off the charger and unplugged for some time, I plugged it back in today and it's not working. The indicator light on the thing that plugs...
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    It's Over

    I have not been a member of this forum for very long, but I just wanted to say that my husband Tom passed away Saturday evening. Our daughter was visiting from Seattle and we were both with him when it happened. He passed peacefully, sleeping in his wheelchair. He was 59, a veteran, and was...
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    Daily Routine

    Hello. My husband is in the end stages, can't do anything for himself, eats very little, no peg tube or vent etc. I was taking him out until about a month ago, I think he's too poorly for it now. I was curious as to what people's daily routines were at this stage. I usually get him up around 8...
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    Is this FTD or something else...

    When my husband had his last dr visit in May I asked about FTD and was told he had some cognitive decline but didn't have FTD. His speech is very poor but he can yell loudly. He is constantly wanting adjustments to his wheelchair, repositioning etc, and if you don't do it straight away he gets...
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    Blending/Pureeing food

    My husband does not have a feeding tube and will not be getting one. Although I cut his food up and he has a semi soft diet anyway, he coughs as he eats now, and takes a really long time to finish anything. I think I need to start making things more soup like for him but wondered what other Cals...
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    Drinking a lot of water

    Hello all. My husband has recently started to demand a lot of water. He is in the end stages of ALS. They don't think he has diabetes as he doesn't have any other symptoms and although he has some cognitive decline he doesn't have FTD. I wondered if anyone else has experienced this and what the...
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    Pictures in my album are upside down.....

    I created an album of my garden pictures on my profile. I took them with my iPad and when I uploaded them they were upside down. I'm not sure how to fix this, can someone help me? Thanks, Amanda.
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    No Peg Tube or anything else.......

    Hello, My husband will not have a peg tube, won't use Cpap, trilogy, cough assist etc.. He can move his head a little from side to side but that's about all he can move, doesn't have much of a voice. He can still swallow fairly well so I have been feeding him a softish diet. The amount of food...
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    I just have to vent a little

    Today I have got my husband up, bathed and fed him, dressed him, cleaned his teeth. He wanted to go to the casino, so I took him. I wheeled him all around there, pushed the buttons for him. I cleaned up his poop 3 times, endlessly repositioned him in his wheelchair. When we came home I put him...
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