This is Jeff Faull's wife Tammy. I wanted to let everyone know that Jeff passed away Friday October 14. Thanks for supporting him. He liked to help others as much as he could. I will post more later. Thanks again.
The inflation pressure on a ROHO cushion is extremely important when it comes to comfort. This link shows the recommended inflation procedure.
Adjustment Instructions
There is no proof out there that stem cells do anything and anyone claiming they can do anything to ALS progression with stem cells now is a charlatan plain and simple. As far as trials goes try for the ones that you feel may help but make sure that the trial protocol won't cause undue stress...
I know this was posted before but the VA changed the page. I think it is more informative. I will post the link in a follow up.
You may know that VA provides benefits and services for Veterans, but did you know that VA also has a number of services designed specifically to support you in your...
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You should be using the Paralyzed Veterans of America (PVA). They have an office in the regional VA building and have worked directly with ALSA to make sure veterans with ALS are taken care of.
I used to post quite a bit in that portion of the forum. Now for the exact reasons Al mentions I don't even read it. For those with legitimate issues sorry but others have ruined it for me.
The first thing any veteran with ALS needs to do is contact their local Paralyzed Veterans of America (PVA) chapter. PVA has and continues to work with the ALS Association to ensure that veterans with ALS get what they need and deserve as quickly as possible. The other organizations are all good...