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  1. S

    I sent you a PM on fbook. I think that is you.

    I sent you a PM on fbook. I think that is you.
  2. S

    No problem; the way it presents itself can be scary (for instance, I have hyperreflexia, etc...)...

    No problem; the way it presents itself can be scary (for instance, I have hyperreflexia, etc...) and you have to have things ruled out. If anyone ever has these sorts of movement disorder type symptoms, it is worth pointing to...
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    Hyper reflexes point more towards ALS, which I have...I think you are highly anxious but I was...

    Hyper reflexes point more towards ALS, which I have...I think you are highly anxious but I was the same way as you! I promise!! Did you join the group?
  4. S

    No reflex points away from ALS. You had all the tests. You are fine.

    No reflex points away from ALS. You had all the tests. You are fine.
  5. S

    Is that a Welsh Terrier? I have one about to turn 11. Please add Painful Legs, Moving Toes if...

    Is that a Welsh Terrier? I have one about to turn 11. Please add Painful Legs, Moving Toes if possible to the list of diagnoses on the do I have ALS post...
  6. S

    I have been exactly where you are. I had MRIs from the brain to the lower back. I had EMG and...

    I have been exactly where you are. I had MRIs from the brain to the lower back. I had EMG and NCV done by best neuro in the region. I was terrified. EMG detects NERVES DYING - you have no nerves dying which is THE BEST THING POSSIBLE. You have something really annoying, but you are not dying!
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    Hey - glad you are going to movement disorders person! You will be fine. I have overactive...

    Hey - glad you are going to movement disorders person! You will be fine. I have overactive reflexes, but many with what I have also have underactibe or absent. ALS should NOT be your worry. Search for group on Facebook PLMT and ask for permission to join. There are videos of feet on there...
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    Yep, the feeling of having lisping, etc... went away after I realized I didn’t have ALS. My...

    Yep, the feeling of having lisping, etc... went away after I realized I didn’t have ALS. My joints have popped, too. I think you probably have a form of moving extremities, painful limbs. I also believe it could go away as fast as it came.
  9. S

    I have it on both feet as opposed to one now, but I do find it is worse if you are obsessed with...

    I have it on both feet as opposed to one now, but I do find it is worse if you are obsessed with it. I was diagnosed in March...still hard for me, but I am moving on with my life.
  10. S

    The stimulator is an experimental surgery. I live near one of the best hospitals in the...

    The stimulator is an experimental surgery. I live near one of the best hospitals in the country, and they will be doing surgery on another woman with it.
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