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  1. panguinjen

    Rog has passed

    Dear All, Roger, my sweet husband, passed away on Monday, Feb. 25th. He is no longer in pain and whole in God's arms. I am so blessed to have had 26 years of marriage to this man who loved us completely. I want to thank all of you who guided me on this journey, your help was invaluable...
  2. panguinjen

    Things have changed

    Dear All, I have not been here much as Rog has taken a serious turn for the worse requiring much more caregiving on my part and also requiring the hiring of caregivers. In the last several weeks he has lost most of the use of his legs, his left arm and his left hand is curling inward to his...
  3. panguinjen

    Three Ring Circus

    Well, I have decided that I am running a three ring circus! In ring one, meet Bella, the shy dog that needs to be trained so she won't knock over or hurt the Alpha Male. You will see great feats of flipping (out) and somersaulting with the added bonus of dragging the trainer (on her hands and...
  4. panguinjen

    My day got hijacked!

    I am so frustrated! I lost my driver's license last week and had an appointment this morning to get it replaced. I had to get gas on the way and when I got to DMV I had a form to fill out. I had talked to Rog on Monday am and asked if he wanted to go and he had told me that he didn't want to...
  5. panguinjen

    Health company wants BiPap back

    Got a letter in the mail yesterday from the company that delivered Rog's BiPap machine in Jan. with some ultimatums that are frying my gizzards. Rog has had problems with the mask they gave him as he feels he is drowning in his saliva at night. I told thr RT from this company about the issue...
  6. panguinjen

    Falling and blacking out

    Hi All~~~~ I need some help. Rog fell today as we were leaving the hotel. He says he tripped, remembered starting falling then blacked out! Has this happened to anyone else? He wants to watch rather than rush to any doctor... He landed on his face, bloodied his nose and bit his lip...another...
  7. panguinjen

    Today is not a good day

    Poor Rog; he lost his mom in January and this is the first Easter without her, feels really tired and can't keep his eyes open, can't eat ham and scalloped potatoes (his favorites), can't talk...I don't know how to make it better....we'll just slog through this day...
  8. panguinjen

    ALS caregiver for husband

    I am the caregiver for my husband who has ALS. He has lost his ability to speak and is getting his PEG tube on Wednesday. He was diagnosed in August of 2011. He is such a model of grace and dignity that I am in awe of him. We live in California and he gets his treatment at UCSF. I miss his...
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