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    Think he's still hanging around!

    Okay- I'm convinced! My Joe's favorite singer was Frank Sinatra! Our annual 3 day drive to Florida each year was listening to every cd Sinatra ever recorded! Last week at his Celebration of Life Memorial service, MY WAY was the musical background for a slide show on his life. He adored Old...
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    CALS -the journey has ended! Now what?

    In the short time since my husband's death, have learned much. Sharing it is cathartic in the grieving process, and hope it will be helpful to others. Some things will not apply to everyone- since we were vacationing out of state when he died but.....for what it's worth, will share it anyhow...
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    VA computers- should I laugh or cry!

    Got an interesting letter from the VA today saying they had been notified of my husband's death. It went on to say if the notice of death was erroneous, and the veteran is NOT deceased, he should contact them directly! We have also received two calls since his death, wanting to schedule...
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    CALS-what to do along this journey

    Still trying to make sense of this 26 months, 15 day journey through the ALS maze. Now that my husband is free, I want to do something that will honor him, and help others struggling with all the ins and outs of doing the best for our PALS and still preparing for our lives without the people...
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    Why CALS stay after the death of their PALS

    Through my months on the forum, have always admired the input of people like Mike, Tillie, Debbie- and the others who have lost their loved ones. Thought they were extraordinary people to stay in touch and still " give". Still think they are extraordinary, but also realize some of it is there...
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    It can't be possible

    An hour again I got a call from the VA hospital where my husband had a peg tube put in friday morning that he had passed away peacefully in his sleep. After calling our children, where else would I go but to my strong friends who have saved my sanity these past months on the forum with their...
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    Mucous on the tongue

    Hubby needs your help. He is having thick mucous build up on his tongue. When he eats/drinks as he is on boost, it seems to thicken the saliva. He describes it as then getting caught on his tongue, in his throat and on his vocal cords. It has a choking effect. We have tried the suggestions...
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    Using abbreviations- an IQ test

    Love the forums but at times feel like this is my Alzheimer's preventative as I try to figure out what various abbreviations stand for. Sometimes I'm successful ( like ROM=range of motion) But other times don't have a clue! Ie FVC, IVIG. Understand it is more expedient to abbreviate but there...
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