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  1. lisa g

    Florida clinics

    Hi Kevin Glad to hear from you. I actually wanted to get with you and Kim and ask a question about ALS clinic. Do you go to Mayo? I am currently going to Cleveland Clinic in Weston for my second opinion. Not expecting a different outcome just for verification of original diagnosis. I'm located...
  2. lisa g

    Happy Father's Day

    Just wanted to wish all of you fathers a Happy Father's Day 😘 Enjoy your loved ones and make some happy memories
  3. lisa g


    Does anyone know about the clinical trial of Ibudilast I read a segment on ALS weekly news. It sounded promising, that it worked together with Riluzole .
  4. lisa g

    Going for 2nd opinion

    I have some questions about my test results from my neurologist and was hoping someone could explain my results. I have pictures of the EMG and nerve conduction reports and am trying to figure out how to insert them.(not that tech savvy). I have an appointment for June 27th with a neuro...
  5. lisa g

    CBD oil

    I have been reading about the benefits CBD oil has on symptoms. Confused about the different grades. Can someone that is using the oil let me know the benefits. Plus, is it OK to buy from a health food store or should it be purchased through a dispensary? I'm new to all this and there is so...
  6. lisa g

    I would like to introduce myself

    My name is Lisa and I was diagnosed 1 week ago with ALS. My neurologist is such a compassionate person, she cried with me while giving me the diagnosis . Her and her husband are a neurologist team. While they suspected ALS the EMG confirmed it. I would like to say that they were fantastic with...