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  1. P

    My heart is broken, but he is free

    Jrzy, I am so sorry for your loss of your husband. You were a wonderful CALS. You and your family are in my thoughts and prayers. Sharon
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    Back from Yellowstone

    Wow, V, you are amazing! I hope your hand gets better quickly. Looking forward to pictures. Sharon
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    Transfers: Sliding board vs. Hoyer

    When my husband could no longer stand and pivot for transfers we had to go to the hoyer lift for all transfers. He did not have any arm or trunk strength so the transfer board would not work for us. Sharon
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    He is flying free!

    Kathy, I am so sorry for your loss of your husband but glad that it was such a peaceful passing. You and your family are in my thoughts and prayers. Sharon
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    Pulmonary Specialists in Pittsburgh, PA

    My husband saw Dr.Kristo (UPMC) and he had a lot of experience with ALS. We saw him at the Monroeville office and also in Oakland. Sharon
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    Questions about BiPAP/Vent

    My PALS, Frank, has described a feeling of difficulty breathing immediately after coming off BIPAP every morning, although it is not close to being as severe as what you describe, Steve. He is on BIPAP via trach only at night time and this has remained stable for the past 4 years. He told his...
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    Kay is flying free

    Marcia, I am so sorry for your loss but glad that Kay is free. She was such an amazing woman and we will miss her dearly. You and all of her family are in my thoughts and prayers. Sharon
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    In sickness and in health

    Have a great trip, V. I hope all goes smoothly. Sharon
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    Columbia's new neck brace

    This would be so helpful for my husband. He is now in the fixed chin to chest position and is unable to use eyegaze. Thanks, Laurie. Sharon
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    2019 Spring trip to Yellowstone

    Steve, thanks for sharing your great photos and descriptions of your exciting trips. My PALS and I look forward to reading about your trips each year. We have not been able to travel for seven years so it is a real treat to read about your adventures. Sharon