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  1. U

    Orphazyme Clinical Trial Hits Full Enrollment

    I'm part of it. It tones down the fasciculations a lot.
  2. U

    Brainstorm Nurown 'Right to Try' participant shares progress

    I talked to the investigator at Uci. She met with the chief science person from brainstorm. He told her that the FDA wants them to complete the trial. She is the one running the nurown trial at Uci. Thought you might want to know.
  3. U

    My clinical Trial experience

    Hello Everyone, I wanted to write about my trial experience. I was part of the cytokinetics phase 2 trial. The drug helped me to retain my muscles and increased my strength for the 22 weeks. Sadly afterwards I lost some muscles during flush out period. I'm slow progressing. I'm now on the...