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    Wholeheartedly Believe It's Bulbar Onset

    Hi All, As promised an update. After what feels like years of waiting I finally got my results through today. The Neuro didn't call me in to discuss results nor did I receive a copy of the report I just received a copy of the letter that was sent to my referring GP. The letter stated "I...
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    Wholeheartedly Believe It's Bulbar Onset

    OK so just had the NCS and EMG. The doctor tested my left leg and left arm. All in all I think 2x needles in the leg and 2x in the arm. Although I asked about the tounge/mouth he stated that as I was having symptoms elsewhere that it wasn't needed. Have to say this is the terrifying part now...
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    Wholeheartedly Believe It's Bulbar Onset

    Hi All, Thanks for the responses, I understand that it doesn't sound like ALS and am willing to take the feedback from the group. Once I have had the NCS and EMG then seen the neurologist again hopefully it will put my mind at rest. If he does give me the all clear then I will certainly be...
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    Wholeheartedly Believe It's Bulbar Onset

    Hi All, Update time I have my NCS and EMG tests booked for the 20th July so I suppose the main update will come after that. I have been to see my sleep doctor and the results were that I have mild sleep apnea. From the results it looks like I don't have obstructive sleep apnea as the majority...
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    Wholeheartedly Believe It's Bulbar Onset

    Hi Igelb, I didn't want to clog the post up too much and ramble on so never mentioned the sleep. I have had the sleep device fitted and awaiting the results. Although I have no problems with sleeping at the moment (I have started to increase my sleep from 6 hours to 8 per night). I'm sure the...
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    Wholeheartedly Believe It's Bulbar Onset

    Hi All, As promised a quick update. MRI of the brain showed nothing. MRI of the cervical spine showed bulging of the C5/6/7 discs with possible nerve impingement at C7. The Neuro doesn't believe these have any clinical significance and wouldnt contribuye to the symptoms I described. He's...
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    Wholeheartedly Believe It's Bulbar Onset

    Hi Guys, I said I would give an update of Neuro appointment after I had been, literally just come out now. I didn't speak with him specifically about ALS as I didn't want to sway how he percieved my symptoms. I gave him a long list of everything I perceived to be wrong with me. He did some...
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    Wholeheartedly Believe It's Bulbar Onset

    Hi Best friend, It hasn't been 7 years of symptoms (at least not in my head) although the symptoms I described in 2012 are similar in nature there seem to be a lot more additional symptoms this time around and to a stronger degree. However I digress. I have been back to my GP who doesn't feel...
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    Wholeheartedly Believe It's Bulbar Onset

    Hi Igelb, Thank you for your reply. I am actually set up with an appointment for the sleep clinic so hopefully any results can go some way to offset my worries. One of my main worries right now is the Hypernasality and minor nasel regurgitation which I cannot really find any other causes for...
  10. D

    Wholeheartedly Believe It's Bulbar Onset

    Hi All, I sincerely apologise for coming on here again. (Last here in 2012). I just wanted to put my thoughts down into words due to the worry it is causing. Firstly I’m a 34 year old male who is very overweight and leads a very sedentary lifestyle I have had a large variety of symptoms which...
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