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  1. J

    too sad

    Hi Mary, I'm sad to hear of your great loss. I think your Dad knew any impatience or frusteration while you were his caretaker was directed at this terrible disease and the situations it creates, and was not aimed at him personally. Being with him through the stages of ALS and never giving up...
  2. J

    Dad's a little down today...

    What are some of his favorite hobbies, things to do etc.?
  3. J

    Tomorrow is the day, stressed to say the least

    Thanks, It's been a very long and frusterating road to get here. My Mom actually expressed a bit of relief in getting the news. Not knowing is sometimes worse than anything. Heck, she may actually grace our presence here sometime in the future. (Mom, if you're reading this, don't be shy :) )...
  4. J

    how bad is the EMG? from mom of 2

    My Mom recently had her 2nd EMG, very thorough and lasted over two hours. She described it as uncomfortable, but not painful. The description of the procedure seems scarier than the test itself. I know it's easier said than done, but being relaxed is critical to getting accurate results from the...
  5. J

    Preserving independance

    We found the remote control deadbolt at a site called tobuyasafe.com (they sell safes and such). I was surprised that neither Home Depot or Lowes sell them. I'm sure they can be found elswhere on the web also. Easy install, paid for itself in a week due to the convinience factor.
  6. J

    Preserving independance

    Hi All, I just wanted to mention that my Mom and I have found some pretty neat stuff that has allowed her to maintain her independance and capability throughout these past months of deteriorating mobility. Lift recliner chair. - It looks like any la-z-boy type recliner, but has a control pad...
  7. J

    What happened to my access?

    Thanks for the info Cindy, my post you responded to here showed up instantly, so I'm sure the issue is just as you described. No problemo.
  8. J

    What happened to my access?

    Hello, Bit off topic, but since I can't PM yet. I notice it takes a day or so, perhaps more, for my posts to show up on the forum. If this is normal, let me know. I'm in no hurry :) But would be nice to get them posted within hours of submission, or suggest a fix if there is a issue on my end...
  9. J

    Tomorrow is the day, stressed to say the least

    We received my Moms firm ALS diagnosis today. We appreciated the cander of the Neuro, she did not beat around the bush, or try to string us along with more tests that weren't necessary. My Mom has been referred to an ALS specialist who will determine next steps from there. We are digesting the...
  10. J

    Tomorrow is the day, stressed to say the least

    Hello All, First, apologies for the lengthy post, I'm wordy :) I've been lurking around here in the forums for quite some time, reading through the great information and witnessing the wonderful support you provide to eachother and newcomers alike. I've always hoped, since stumbling upon this...
    • JoeinAZ
    • Thread
    • ability als awareness back battery chair decline emg family family member foot foot drop friend health hours information kids life lifts mnd mobility mri pain power problems reading research scooter shoulder support surgery tests therapy unsure walker work worried young
    • Replies: 11
    • Forum: General discussion about ALS/MND
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