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  1. E

    This is All New to Me

    On Oct. 22nd second EMG for second opinion confirmed ALS. Disappointed though not surprised. Doctor was not really able to explain why the onset of hip joint pain. I thought there was not supposed to be much pain with this illness. Does someone have any insight into this matter? I would like any...
  2. E

    This is All New to Me

    WOW! That was a bundle of information. Some of the abbreviations I will need to look up and see what they are. Thank you everyone for all of the information you gave me. Absolutely over the top.
  3. E

    This is All New to Me

    Thank you, Nikki J. Also, is there anyone on this site taking meds to slow down progression of our problem willing to post?
  4. E

    This is All New to Me

    Sadly, I don't get to sleep all night. Every four hours, every day, I catharize my wife's bladder.. She has a neo-bladder. That type of bladder she has was made from a section of her small intestine after her natural bladder became hemorrhagic from chemo for breast cancer. That is another long...
  5. E

    This is All New to Me

    Hello everyone. Is fatigue an issue anyone? I need at least two naps each day, 90 minutes to 120 minutes each day.
  6. E

    This is All New to Me

    Nikki, thanks for all your help. The help matters a lot. First my nest neuro appt. has been moved up to Oct. 11th. I have been told if I feel I am getting worse go to the ER and give them the name of my Neuro, the Cardiologist and the Epileptologist. The ER will be happy as, you know what! I do...
  7. E

    Slow healing after an infection

    Has anyone had an infection that had gone away but the infected area was very slow to heal and is very tender to touch? I had an infection, cause totally unknown, was MRZA. Now the area is very tender to touch. This is 6 weeks after the infection cleared up. I was on two antibiotics Thanks for...
  8. E

    This is All New to Me

    The diagnosing neurologist is an ALS specialist and the reason the second test is: for a second opinion and because I have epilepsy, I take three anti-seizure meds daily and have a Vagas Nerve Stimulator, all for seizure control. I have epilepsy because of brain injury as an infant. More...
  9. E

    This is All New to Me

    First, thank you for reading and responding to my post. I am sorry. I did not make it clear enough. My first visit was with my neurologist for my epilepsy which I have been seeing for fifteen years. We discussed my new symptoms and was referred to a neurologist and had my first EMG. I get...
  10. E

    This is All New to Me

    I'm 76 years, is that a little late in life for ALS? My left leg "tingles" much of the time. I have to dance because I drop knives when I try to fix meals. I can't walk a straight line. My left leg seems to do its own thing by not always responding to what I want it to do. My left leg causes me...
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