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  1. M

    Nudexta & PBA

    My mom stopped taking it two months ago after taking it for 6 months. I haven't noticed a difference, but obviously it is different for everyone.
  2. M

    swallowing rilutek with difficulty

    You may want to discuss getting a Peg tube with your doctor. It is likely that you will need it at some point. The longer you wait to the more risky the surgery is, especially if you have lung or breathing issues. My mother has had a peg tube for 2 months now and hasn't used it except for...
  3. M

    Terrible Work Experience

    My mother has ALS. Has been diagnosed for about a year now, although she was diagnosed late because she had fallen and injured herself and was waiting for almost a year a hip transplant. Looking back she has had ALS for several years as she was falling often and was unable to climb two flights...
  4. M

    Can't swallow food anymore

    My mother is progressing very quickly as well. Nearly has the same symptoms now. She is still eating but I don't get why. Should be peg only, but she is stubborn. And of course I cant argue with her. I get that she doesn't want to give things up. But it is so difficult when everything comes at...
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