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  1. Lkaibel

    The Next Part of the Journey

    I just glanced down again at the floors he laid five years ago, and a scream is stuck in my throat. I say that not for sympathy, but to show others on this path that I am like you, not all sunshine and light six months out. It’s still real, it’s still raw, I’m still coping. Thanks all.
  2. Lkaibel

    Moving forward

    Sue, I suggest you think on going in December. Travel is great, that total change of surroundings and people just makes so much difference. I’m glad Inhave put misgivings aside and traveled. If Zoloft helps by all means go for it, good thinking. The back and forth of no longer having the...
  3. Lkaibel

    The Next Part of the Journey

    To all of the above, I should add that I miss Brian so much some days I think I will explode. The trick is in not pinning, but doing and focusing on what’s here and what can be done rather than that incalculable loss and all that will never be.
  4. Lkaibel

    List of diseases to be rule out before diagnose

    Yes, there are specific EMG patterns associated with ALS. Those are chronic and active denervation and short wave abnormalities. For my husband, the EMG in combination with foot drop was enough to lead the Neurologist straight to “strongly suspected MND” and to start rule out tests ASAP To be...
  5. Lkaibel

    The Next Part of the Journey

    I changed my mind. I’ll move in this thread another six months, let it top out at the one year anniversary of Brian’s passing. Today marks six months. Six months since that morning of sadness and great relief. I started to reply to a VSED thread last week, not yet... I will be all over those...
  6. Lkaibel

    Moving forward

    My theory anyway is pass if they offer you a plug/fix. Those seem to fail in 3-6 months and your back needing a new tire anyway! I’ve had a whole adventure in the “cooking for one” and I felt like my considerable culinary skills (forgive the brag) were impaired by the past few years of blender...
  7. Lkaibel

    My turn in the bowl...

    Wishing you luck indeed but you don’t need to depend on luck alone! Plenty of good information here for starters! I’m sorry your Dx was confirmed, but I’m glad you can get more help now.
  8. Lkaibel

    I’d Like My Husband to Know...

    Thinking of you and your wife Kevin. In the very beginning when I was down, I use to think “ Our story isn’t over yet.” And I’d feel better. I was right, it was not. I hope you two are enjoying your days as much as possible :)
  9. Lkaibel

    I’d Like My Husband to Know...

    If my Brian could hear me I’d tell him... I love him more than anything in this world, even if I told him that already. That the park where we once spent a beautiful Art Festival night, the Mill City Ruins is being remodeled. That i’m starting to work with ALS Advocacy, not to dwell on what...
  10. Lkaibel

    Bill to eliminate 5 month SS delay

    Thank you! This is so important.
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