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    neck pain

    My husband, Frank, has had increasing neck flexion (chin resting on chest) and tilt to the right. His head is now so far forward that the wheelchair headrest supplies no support. He has a neck brace but even this no longer helps. I am applying heat and he is taking extra strength Tylenol with...
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    humidifier for Trilogy

    My husband, Frank, has a trach and uses the Trilogy with attached humidifier only at night. Saturday we lost power for 5 hours during the night. The Trilogy switched to battery but the humidifier was off due to loss of power. He claimed that he felt like his trachea felt like it was burning...
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    Hoyer Use on Carpet

    I am trying to use the Hoyer lift to lift Frank from wheelchair to bed but am finding it almost impossible to move the lift on the carpet even though we have very low pile, commercial carpet in the bedroom. I was thinking of buying several of those plastic pads that you typically put under...
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    Washing hair

    My PALS, Frank, has a trach and is in a wheelchair. I do daily sponge baths when he is in the bed. Does anyone have any suggestions as to how I can wash his hair? We do not have the ability to roll the wheelchair up to a sink (no opening below the sink for his knees). He also has very limited...
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    Do NOT TOUCH my Trilogy

    Well, after almost 6 months of my husband trying to use his Trilogy without success, I finally got settings that were working for him, thanks to much help from Laurie. He was using it each night and things were going well. The respiratory therapist came on Fri. to adjust the settings on the...
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    Delayed Gastric Emptying

    Does anyone know what medications can help delayed gastric emptying? My husband has a PEG and gets 4 feedings a day by a pump. Sometimes when I connect him for a feeding there is still Jevity in the stomach from the prior feeding 3 hours earlier. He only takes Zantac twice a day for reflux. He...
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    My PALS anxiety

    My PALS has been having episodes where he feels like he can't breathe normally. When he is experiencing this he has repeated swallowing but does not seem to be gasping for air. He says that it is "in his head" and asks me to open the window (even if it is below freezing outside). This usually...
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    trach questions

    My PALS has had a trach since last July. He had a very long hospitalization and the outer portion of the trach was changed in the hospital prior to discharge in Sept. Can someone tell me when this needs to be changed? I change the inner cannula every day and do routine daily trach care as I was...
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    PALS in denial

    My PALS was able to eat and drink without difficulty prior to last June when he was hospitalized for bilateral subdural hematomas from multiple falls.( He had a walker but refused to use it.) He had a very stormy hospital course and was hospitalized for 10 weeks and required intubation with...
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