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    bulbar onset diagnosed 8/2024, has anyone passed away when they could still walk and use their arms?

    I want to end it as soon as I start loosing my ability to get around on my own. I live along no family alive, My worst fear is to be bed bound and not beable to communicate with anyone. I have bulbar and cannot talk now. my plan is once I start loosing my ability to walk or use my arms I'm...
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    bulbar onset diagnosed 8/2024, has anyone passed away when they could still walk and use their arms?

    good idea thks
  3. D

    bulbar onset diagnosed 8/2024, has anyone passed away when they could still walk and use their arms?

    before this ALS , i wanted to donate my organs is this still an option for me?
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    bulbar onset diagnosed 8/2024, has anyone passed away when they could still walk and use their arms?

    I hope I go before I lose my legs and arms, I'm 74 and live alone, hopefully I will pass away in my sleep, the dr said carbon monoxide builds up in your body when you do not breath strong enough and you die peacefully, I hope he is correct, I also have copd. My bulbar started 1/2024.
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    bulbar onset diagnosed 8/2024, has anyone passed away when they could still walk and use their arms?

    My breathing test came back with only 35%, I made an appt to have a feeding tube installed, because I can not eat much and need to thicken fluids, I've lost around 50lbs. My arms and legs are still strong, I'm afraid my breathing is going to kill me if it keeps getting worse. My bulbar...
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