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  1. R

    confused - and dazed

    Hello there! I have been diligent in trying to understand and believe everything the ALS clinic in Vancouver has been telling me since June of 2009 when my brother Ray was diagnosed with bulbar onset als. now, I'm confused. and dazed. and trying not to be pissed off. Okay, we had a wee...
    • ramonadegraaf
    • Thread
    • advice als bipap brother bulbar bulbar onset chair clinic cold confused diagnosed family information kids manual onset peg questions story ventilator what is the truth?
    • Replies: 1
    • Forum: Off topic everything
  2. R

    Question about respirators and care at home (please help if familiar)

    Hi, there, I'd rather not talk about medical care systems. what I really need information on is the day-to-day realities of caring for some one with bulbar onset needed a ventilator. My brother, Ray, has full use of his limbs. Granted there is now muscle wasting in the hands. But he can...
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