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  1. U

    I am curious

    Myooshka, These symptoms are thought to be associated with an unidentified virus. Benign fasciculation syndrome is a term used for many of these symptoms that people experience with no evidence of muscle weakness or atrophy. It is believed in the medical community, but again no one knows...
  2. U

    please! Do not put things out of context

    I believe I respond appropriately When I respond I select on the quote to the person I would like to respond to. This will allow others to see what I commented or could easily ignore it. I am not speaking on behalf of anyone specifically, I am generalizing for the lay public. If you feel that...
  3. U

    please! Do not put things out of context

    I am not trying to hurt anyone, but I will stand up for what I believe is right. I know that twitches alone, with no evidence of atrophy of clinical weakness is not ALS. With all respect, I do twitch all the time. These experiences has helped to research further and learn that twitches by...
  4. U

    please! Do not put things out of context

  5. U

    Why is ALS taken lightly in the begining stages?

    I have seen topics related to this one several times. To start, ALS is a disease that is extremely rare yet it can appear so common in places such as this site. I think ALS has an incidence of 2-4/100000, which makes this condition rare. 80% of these cases are sporadic and bulbar ALS is even...
    • ucla2004
    • Thread
    • als atrophy bulbar bulbar als diagnosed diagnosis hope hyperreflexia information life medical muscle muscle wasting neurology nih onset progressive weakness sporadic stages symptoms twitches weakness
    • Replies: 2
    • Forum: Could this be ALS?
  6. U

    please! Do not put things out of context

    Annmarie, Alright. I do not deny people are suffering from other omnious diseases. I am only saying that twitches by themselves are benign. If someone suffers from cramping, clonus, stiffness or any other symptom that is disabling, then I think it is a good idea to discuss these things...
  7. U

    please! Do not put things out of context

    Vmd, What you said appears to be true. Keep in mind that this site is also shared with thousands of other people who only read these messages and freak out when they see that twitches are associated with ALS. Twitches and cramps are seen in other conditions as well. movement disorders are...
  8. U

    please! Do not put things out of context

    Thank you for warm welcomes. I can see that most members from this site are not taking my post lightly. Again, this post was intended mostly for non-member readers and should have stated in my post. I apologize. I can only speak for myself and what I have read in the literature, but I am fully...
  9. U

    please! Do not put things out of context

    Jamiet, I do consider myself fortunate that God has given me 27 years of good life and health. I am young and consider myself fortunate that I can still continue to enjoy my activities of daily living. I apologize for any discomfort or harm that I may have caused to you. I was not speaking...
  10. U

    please! Do not put things out of context

    I would never understand what you are going through and I apologize for any disappointment. Have meds helped? If your fasciculations and cramps are getting worse I would consider seeing a GP or specialist who can prescribe meds for muscular relief. Baclofen seem to help many patients I see in...
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