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  1. C

    Caregiver frustration, anger, guilt...

    I ditto your response to newbie. I lost my husband to ALS 9 months ago and I know exactly how you are feeling. Our ALS Assoc. is starting a new group for Survivors of ALS and hopefully this will help me with all the emotions that I'm feeling. This ugly disease leaves the family and...
  2. C

    ok........I have been away.....and I need yalls help

    Netty, I know exactly how you feel, as caregivers all of us have felt like this at one point. Please try and contact hospice to get some help for you and Freddie. I'm only a phone call away if you need to vent. I'll keep you in my prayers. Remember you are not superwoman and you need...
  3. C

    clinic yesterday--shocker

    My husband got his peg and trach in January, 08. He did not want the c-pap and sometimes even questioned why he needed the trach. The trach helped with suctioning when he became to weak and the diaphram got weaker to get the secretions out. He was still eating and drinking when he got the...
  4. C

    My sweet husband Tim lost his battle

    Windy, I know exactly how you feel. It will be 6 months tomorrow that my husband passed and I miss him very much. He was my best friend and soul mate, it is so hard to let go of them. I go to the cemetary every sunday and when I leave, I feel like he is with me. I'm just now at the...
  5. C

    Anyone heard from Lorie or Nettie?

    Does anyone have an update from Lori or Netty?
  6. C

    My husband lost his battle...

    I know what you mean when you say the house is so empty. My husband lost his battle on April 24,2008 at home with all of his loved ones with him. My heart goes out to you and your family. My husband was fine the night before and in the morning he wasn't doing well only could shake his head...
  7. C

    Question? Heavy Metal Testing

    My husband was diagnosed in 8/2006 with ALS and symptoms started in 2005. Since the diagnosis he also had a high red blood cell count and had to go weekly for them to withdrawl blood (1 pint) to lower the count. They said his blood was the consistancy of peanut butter so thick. When you go...
  8. C

    My husband passed 4/24/2008

    Thank you Cindy for removing the smiley faces. I really appreciate your kind words and I'm trying to think of all the good times before this horrible disease struck our family.
  9. C

    My husband passed 4/24/2008

    I do not know how the smiley faces got into my post but I sure didn't mean for that to happen. If someone know how to edit please take them out.
  10. C

    My husband passed 4/24/2008

    I feel that I'm on an emotional roller coaster up and down. Some days I think I was totally in denial about the disease even though I cared for him. With his last day coming as a shock, no warnings I sometimes beat myself thinking of things I should have asked him. I guess in reality I thought I...
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