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  1. L

    Very confused and need some advice

    Thank u Mulino - I too pray that he makes a full recovery - he truly is an amazing person :)
  2. L

    Very confused and need some advice

    Thanks Famdamily - is it possible to have had polio without having had a prior paralytic attack? I mean can you have had an intial bout of polio but without paralysis, just a fever-like illness...? Just wandering as Dads symptoms are more like post polio but he cannot recall having had any...
  3. L

    Very confused and need some advice

    Thank you to again Wright, I will ask Dad's neurologist for a second opinion or further EMGs. It's helpful knowing that others feel there might be further tests that need to be done before an official PMA or MND/ALS diagnosis is given. Just out of interest, I have been reading about post...
  4. L

    Very confused and need some advice

    Thank you Famdamily for your kind wishes - in your experience, have you ever had any difficulties with breathing? Have your lower back issues had any impact on walking (Dad can walk, he just feels that when his back "goes", he might fall) I am so fortunate that whatever dad has, it is a slow...
  5. L

    Very confused and need some advice

    Thank you for getting back to me Wright - really value your thoughts, Yes he has normal muscle power in his legs and left arm, he does have does left shoulder weakness and a weak lower back but it's nothing compared to his right arm and hand. He has fasticulations everywhere - does that occur...
  6. L

    Newly diagnosed and confused...

    Hi everyone - I just tried posting on the PMA forum but havent had any responses as yet so thought i'd re-post here... I'm just wanting some advice and support and hoping for some help... My father has recently been diagnosed with MND after 7 years of asymmetric muscle weakness and atrophy...
    • Lola-77
    • Thread
    • arm atrophy back bipap chronic denervation confused dad diagnosed diagnosis falling father health increase ivig mnd muscle muscle weakness neurologist new diagnosis newly diagnosed newly diagnosed mnd onset oxygen pma power progression support symptoms tests wanted weakness wheelchair
    • Replies: 2
    • Forum: Newly diagnosed
  7. L

    Very confused and need some advice

    Thanks Laurel, thats really kind of you - hoping to get my head around things :) Lola
  8. L

    Very confused and need some advice

    Hi everyone - just wanting some advice and support and hoping for some help... My father has recently been diagnosed with MND after 7 years of asymmetric muscle weakness and atrophy just in his right hand and arm. He was originally diagnosed (7years ago) with multfocal motor neuropathy but as...
    • Lola-77
    • Thread
    • arm atrophy back bipap breathing chronic denervation confused dad denervation diagnosed diagnosis falling father health increase ivig mnd muscle muscle weakness neurologist new diagnosis onset oxygen power progression support symptoms tests wanted weakness wheelchair
    • Replies: 14
    • Forum: Progressive muscular atrophy
  9. L

    In limbo....MMN or motor neurone disease...HELP!

    Sorry I left something out....he did see a breathing specialist who was the first one who queried the diagnosis of Multifocal motor neuropathy as he said that breathing was not involved with this condition although from my reading, I know that although it is rare....MMn can effect breathing...
  10. L

    In limbo....MMN or motor neurone disease...HELP!

    Sarah and Helen, Thank you so much for your responses, I cant tell you how much reading this forum has helped me in managing some of the feelings I've encountered in response to my Dad's illness. I'm trying hard to be strong and on my good days feel that this journey is making my family...
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