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  1. S

    Wait and see approach

    Thank you everyone for all your responses, they're very much appreciated. I will push harder and keep on until I get somewhere. Thanks Wendy, I've been told the waiting list for neurology in my area (Shrewsbury & Telford) is 18 months. I did go out of area but seems like they are short too...
  2. S

    Wait and see approach

    Hi Karen, Thank you for your reply. I've been told by my GP that there is a national shortage of neurologists and none in our area. The joys of the UK's NHS. I just have to wait it out and try not to worry too much. Most days I just get on with it because I have to but on those odd days...
  3. S

    Wait and see approach

    Hi Everyone, It's been a while since I've last posted and not a lot has changed since (diagnosis wise). I really don't want to bother you with a huge list of symptoms, nor do I want to come across like a huge worry wort, when my concerns are many of your realities. So I'll try and keep it as...
    • Sammbie
    • Thread
    • ability advice arm atrophy clinical diagnosis foot hyperreflexia ignore movement mri neurologist questions symptoms tests thenar video worry
    • Replies: 6
    • Forum: Could this be ALS?
  4. S

    Still here, waiting in limbo land..

    Hi again, I've been busy trying not to think too deep about my health since my last post. Slightly more progression in my hands, in particular the left and in the left leg. I'm dropping things on a daily basis now and can't turn my front door key with my left hand anymore. Still not had the...
  5. IMG-20170522-WA0000.jpg

    IMG-20170522-WA0000.jpg

    • Sammbie
    • Media item
    • Comments: 0
    • Category: Could this be ALS?
  6. S

    Still here, waiting in limbo land..

    Thanks Wendy, That's what I am finding hard is to achieve that balance. I'm a single mom of 3, aged 12, 9 and 8, we've already had 4 tough years through DV and stalking. We also have a 10 year restraining order to prevent dad contacting us. At a time when I should have been piecing our...
  7. S

    Still here, waiting in limbo land..

    Hi everyone, I posted a little while ago (March, I think). I was waiting for my EMG, which I had on the 1st April. Since my last appointment with my neurologist my symptoms progressed some more, more weakness and atrophy in left foot and hand and a cluster of pyramidal signs. Due to the...
    • Sammbie
    • Thread
    • ability atrophy back brain early emg fingers foot hours ignore kids mri neurologist progression support symptoms wanted weakness
    • Replies: 3
    • Forum: Could this be ALS?
  8. S

    Limbo Land - where do you turn?

    Wendy, Thank you so much, some very practicable and doable advice, whilst it seems simple currently I'm struggling to see the wood from the trees. I will start the self referral process and ask the GP in regards to physio. Anything that helps whilst waiting will be a blessing. I really hope...
  9. S

    Limbo Land - where do you turn?

    Hi again, I posted a month or so ago and have been waiting for further tests and trying to just get on with things in the meantime. This is really a question for anyone who understands the UK's NHS system, I was in a UK group but seems I've lost the access to post. I have neurological signs...
    • Sammbie
    • Thread
    • advice atrophy back children clinical clonus diagnosis emg life mnd muscle muscle twitches neurology scared support tests twitches weakness work
    • Replies: 2
    • Forum: Could this be ALS?
  10. S

    Ruling out ALS

    Thanks Lenore, I sincerely hope you and Mike are right. The severe pain is now gone, MRI indicated inflamed nerve roots causing neuropathy pain. Black out's where a side effect of gabapentin I took for the pain. All had cleared up now. I hope those cards turn a good hand for me, I'm...
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