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  1. P

    Anyone started on Radivica yet? Use this thread to discuss access/ insurance

    I've been approved for it by my ALS clinic. Now begins the dealing with my insurance to see if/how much they might be willing to cover.
  2. P

    Thank you!!!!!! Happy Eclipse Monday to you and yours.

    Thank you!!!!!! Happy Eclipse Monday to you and yours.
    • profeJ
    • Profile post
  3. P

    Greetings from Santa Fe, NM I hope you're well.

    Greetings from Santa Fe, NM I hope you're well.
    • profeJ
    • Profile post
  4. P

    PALS roll call Wednesdays (or whenever) PALS ONLY PLEASE

    Hello and Happy Thursday (17 August 2017) to all. I am checking in from Santa Fe, NM. I am back at work for another semester of teaching. Physically I am well. Weakness in right arm/hand, fatigue and some balance issues, while mentally I continue to have ups and downs. I am looking forward to...
  5. P

    newly diagnosed

    TGIF everyboday 6/9/2017 I hope everyone is doing well and that everyone is mostly happy. Physically I'm doing ok (weak right hand and wrist, nighly cramps and shaky legs and balance at times) and mentally I have ups and downs. Have a great weekend!
  6. P

    newly diagnosed

    Update! I went to Barrow Institute in Phoenix where my diagnosis of ALS was confirmed. Part of the reason I haven't logged on is because this is still difficult for me and my family though I am sleeping better and every day coming to grips with our new reality. Physically I feel fine with some...
  7. P

    newly diagnosed

    Hi, all-- I''m not sure if this is the appropriate place to ask this question but I will. What are everybody's thoughts on Rilutek (riluzole)? The neurologist has prescribed it to me but I am a person who hates, hates, hates taking meds. Do the benefits outweigh the negative...
  8. P

    newly diagnosed

    Thank you everybody for your encouraging messages of optimism and hope. I will get my second opinion in Phoenix on April 24. I appreciate all who have read my post(s) and reached out to me. Have a great Easter/Passover/Tax Day / mid-April :)
  9. P

    Very worried and scared with ALS symptoms

    Update! I went to the University Hospital for a second Nerve Conduct Study and EMG. NCS: The doctor tested both arms, hands, wrists and my right leg. EMG: The doctor tested my right arm, hand, as well as my left arm, right leg and back. While she said she tried everything to find symptoms...
  10. P

    newly diagnosed

    Update! I went to the University Hospital for a second Nerve Conduct Study and EMG. NCS: The doctor tested both arms, hands, wrists and my right leg. EMG: The doctor tested my right arm, hand, as well as my left arm, right leg and back. While she said she tried everything to find symptoms...
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