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  1. P

    Hi Poo - good luck with your EMG. I know where you are coming from and this beastly NHS does...

    Hi Poo - good luck with your EMG. I know where you are coming from and this beastly NHS does not help. I've had three EMG's - all okay. Paid for the last one. Neuro's are so condescending here. First one told me my knickers were too tight and causing neuropathy. I've got the tremors and...
  2. P

    Hi - sorry I did not pick up your message until now. Yes I did see Dr Gareth Smith and I have...

    Hi - sorry I did not pick up your message until now. Yes I did see Dr Gareth Smith and I have to say he was not as bad as Dr Brendan Maclean who told me my knickers were too tight. I'm not impressed with any of the neuros at Truro. They have got such a patronising and dismissive attitude,
  3. P

    Do you think I have ALS?

    Regarding your snapping finger. I've just been cleared of MND and am determined to take it on board. However, I have also just had an operation for "snapping finger". They call it "trigger finger" here but it's a form of tendonitis. My finger would stick in the bent over position and then...
  4. P

    I'm new and frightened

    I went to my specialist appointment on Friday. He did all the usual strength tests - resistance, heels, toes, hands, etc and said there was no weakness at all. He then did the EMG test, only on the left leg - above the knee, the calf and the foot and said thatapart from a couple of small...
  5. P

    I'm new and frightened

    Thank you all so much for your replies - they make me feel that little bit less alone. I've actually been avoiding my computer for the last few days, it's been covered up with a picture resting against it. It's no use me reading the same things over and over. I'm now in the process of typing...
  6. P

    I'm new and frightened

    I'm in a lonely place today - I've been twitching and trembling down one side all night - it's not so bad if I don't lie on the left side. I've got great friends but I live alone. I spoke to my GP yesterday and he advised to cut walking down to just strolling about. My left leg and buttock...
  7. P

    I'm new and frightened

    Hi Olly, yes it is private. This thing has been going on three years with the initial diagnosis of neuropathy caused by overweight and tight underwear. As I remarked to my GP, I sound like "Godzilla meets Ann Summers". I still get angry and upset when I think of that man so I really did not...
  8. P

    I'm new and frightened

    Well trawling the internet may have paid off! I have discovered a consultant neurologist who specialises in MND and related conditions. He is about 80 miles away. I phoned expecting to get his secretary and he actually answered his own phone, so I had a chat with him. He is willing to see me...
  9. P

    I'm new and frightened

    Thanks for all your support. I'm really worried at the moment because since I did a 3 miles up and down cliff walk the other day things seem to speeding up. My leg feels really "odd" = stiff down the back, buzzy on the calf and thinner than ever. I had put it to the back of my mind for the...
  10. P

    I'm new and frightened

    I've been reading this board for quite a while and finally made the decision to join. I'm a 64 year old woman. Two and a half years ago my knees were really painful so I went to see a physio for advice. She said I had lost the muscle on the inside of my knee and gave me some strengthening...
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