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    Mucus Help- Bulbar ALS

    Dear all, My mom has been having a very difficult time with mucus accumulating at the back of her throat and not being able to swallow or get it out. She uses a cough assist once a day which she hates. A suction machine helps a little but not as much as we hoped to. For medication, she takes...
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    Bulbar ALS Diagnosis

    Thank you Laurie and Nurse 321. I appreciate your advice and will try to do the same. Nurse321, My prayers and best wishes to you. Hugs!
  3. P

    Bulbar ALS Diagnosis

    Thanks Laurie. The first diagnosis was at Houston Methodist Hospital. Yes, both doctors said ALS. :( Best regards.
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    Bulbar ALS Diagnosis

    Hi all, My mom was diagnosed with Bulbar ALS in June of 2017. Her initial diagnosis was made by a specialist in Houston. We visited the Mayo clinic last week to get a second opinion where the doctor did some basic evaluation and made the same diagnosis. He suggested he didn't need to perform the...
    • pm2017
    • Thread
    • als bulbar bulbar als clinic diagnosed diagnosis emg neurologist second opinion tests wanted
    • Replies: 9
    • Forum: Newly diagnosed
  5. P

    Bulbar ALS - treatment options?

    We are going to start Nudexta soon, hoping for the best. And we will stay away from these so called clinics. Thanks for your feedback everyone.
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    Bulbar ALS - treatment options?

    Thanks Greg and Nikki. So thankful for this forum and you guys. We had contacted few stem cell clinics and got immediate responses. One clinic we were considering is NSI stem cell. Have you heard about this place? I'm skeptical now after reading your comment and several other threads, but just...
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    Bulbar ALS - treatment options?

    Hi everyone, My mom was recently diagnosed with Bulbar onset ALS. We are desperately trying to find some alternative treatment options besides her regular medication. I read some previous threads with really good information but wanted to check again if anyone had recommendations regarding...
    • pm2017
    • Thread
    • als bulbar bulbar als bulbar onset cell clinical diagnosed information onset stem cell treatment treatments wanted
    • Replies: 11
    • Forum: General discussion about ALS/MND
  8. P

    Hi TxRR, Hope you are doing well. My mom was recently diagnosed with Bulbar ALS and we are...

    Hi TxRR, Hope you are doing well. My mom was recently diagnosed with Bulbar ALS and we are looking into alternative treatment options for her. I came across the thread where you mentioned trying out Stem cell treatment at Celltex in Houston. Could you please share if you did go ahead and pursue...
    • pm2017
    • Profile post
  9. P

    Wife diagnosed with bulbar ALS - some questions

    Sorry to welcome you here. My mom was recently diagnosed with Bulbar ALS as well. We saw Dr Sheetal Shroff at the Methodist Hospital in Houston and I highly recommend her. It took us about 2-3 weeks to get an appointment with her. My parents don't live in the United States so my mom does not...
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    Possible Bulbar ALS

    Hi all, My mother was diagnosed with possible Bulbar ALS few weeks ago. We're praying that it's something else that can be treated. Wanted to share her symptoms and hear your thoughts/suggestions please. She started having voice issues, mainly hoarseness, since about 8-9 months ago. Few months...
    • pm2017
    • Thread
    • als bulbar bulbar als choking diagnosed emg movement muscle muscle weakness neurologist possible a speech speech therapy swallowing swallowing issues symptoms test therapy voice wanted weakness
    • Replies: 0
    • Forum: Could this be ALS?
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