Search results for query: *

  1. C

    Tried to find. Your supplement list, can you assist

    Tried to find. Your supplement list, can you assist
    • Chief T
    • Profile post
  2. C

    Have you started Radicava? Use this thread to discuss experiences with receiving radi

    Herdaugther- I see that your mom was just diagnosed in Aug, I was diagnosed in Jul. It seem right after the shock of finding out. I started to develop new symptoms. Unable to sleep well and spasms seemed to start in more places within a month. I found that reducing the stress with...
  3. C

    Have you started Radicava? Use this thread to discuss experiences with receiving radi

    Wilson2009- the port is located under the right collar bone.
  4. C

    Dave, you mentioned VA. I'm about to retire and will be on VA also. Presently, I'm using Option...

    Dave, you mentioned VA. I'm about to retire and will be on VA also. Presently, I'm using Option Care to access the port and medication is sent for home infusions that my wife does. Is this the same process you are doing, does a nurse come to your home and access your PICC every 7 days. And can...
    • Chief T
    • Profile post
  5. C

    Have you started Radicava? Use this thread to discuss experiences with receiving radi

    Port Access: I've had my power port in place now for 3 months, the needle is changed out every 7 days for me. Believe they said in a hospital setting they sometimes leave in longer. I wouldn't recommend, since bathing by bath is a little trivial and the port seal gets wet. It's definatley a...
  6. C

    Have you started Radicava? Use this thread to discuss experiences with receiving radi

    Yes, I find that eating prior to treatment and eating crackers during treatment works better for me. If not, my stomach gets upset. Also find that there is an increase of spasams for the first 4 days starting the treatment again then subsides. This is my 5th cycle of infusions since starting in...
  7. C

    Have you started Radicava? Use this thread to discuss experiences with receiving radi

    Just completed my 34th treatment with Radicava...was seen by my Doctor, She said my ALS score hasn't changed. Notice that when I start the 10 day treatment, I get more entergy starting on the 4th day of infusion. Currently, on my 18 day rest period day 5 and noticed the last couple days more...
  8. C

    Have you started Radicava? Use this thread to discuss experiences with receiving radi

    I find that while Im doing the infusion, I have to eat cracker or my stomach growls like it's hungry. Lol. 8-)
  9. C

    VA vs Tricare Coverage Discussion

    Thank you so much, Great information. God Bless
  10. C

    VA vs Tricare Coverage Discussion

    Question, just found out that once I apply for Social Security Disability that Medicare is automatic. Should I look into getting any supplement Medicare Group B. About to retire and unfamiliar with what Tricare, VA cover. Another concern is I’m on Radicava, and concerned I can keep using the...
Back
Top