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    Phase III: Dexpramipexole

    tdamess, Here is the link to the sodium chlorite discussion forum: Neuraltus - ALS Research & Treatments - ALS Forum Thanks, HP
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    NP-001 Promising Phase 2 Clinical Trial

    About 5-7 years, unless we do something about it.
  3. H

    NP-001 Promising Phase 2 Clinical Trial

    Llwlpn, It is our hope of expedited FDA approval. By showing the world the amazing effect of thus drug we may be able put public pressure on both Neuraltus and the FDA to approve thus drug quickly. Also, if you have bulbar onset and can still talk please record your voice tonight before your...
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    NP-001 Promising Phase 2 Clinical Trial

    Do what is right for yourself. I have had a remarkable response from NP001.
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    Dexpamipexole Study

    llwlpn, Congratulations on getting into the trial. I finished my third round of infusions the week. The effect this drug has had on me has been simply amazing. Do you have a PatientsLikeMe account? It is so important to get one so that the world can see your progress if you are fortunate to get...
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    NP-001 Promising Phase 2 Clinical Trial

    I get my info from my own experience, but this experience is duplicated in at least one other person (Persevering) and improvements are reported by two others. Relative to NP001 the expectation for Dex in much lower. This thread is very long but very informative: Neuraltus - ALS Research &...
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    NP-001 Promising Phase 2 Clinical Trial

    Are you eligible? They will pay for hotel costs. I woud make every possible effort to get to one of those site. It may save your life or your loved one's life. You have a 33% chance of not getting the drug if you go. You have a 100% chance of not getting the drug if you don't go.
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    NP-001 Promising Phase 2 Clinical Trial

    I have to say that the ALS clinicians at UKY have to be the best I have met. Dr. Karsarskus is one of those Dr's you trust with your life. (I might have misspelled his name here). The rest of the team are equally thoughtful and caring. Your father is in good hands.
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    NP-001 Promising Phase 2 Clinical Trial

    The drug seems to stop the progression of the disease cold. The longest anyone has been on it was 6 months. During those 6 months the FRS scores for those patients remained the same. There are 3 people on PLM whose FRS scores have gone UP a little since taking the drug (of course they might be...
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    NP-001 Promising Phase 2 Clinical Trial

    Are you at the University of KY site? I am there too. Can you tell me if he had any symptoms a few hours after the infusions? I would assume that if the neurologist at that site thought it had anything to do with the drug he would have stopped the trial for him right away. Can you tell us...
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