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    New Law Enacted Yesterday

    al's passing ive only posted a few times. my brother has als. i wanted to know about the diaphramatic pacer. he led me in the right direction. what a wonderful man! i send my sincere condolences to his family. penney21
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    DISGUSTED I'M TRYING TO HELP MY BROTHER WHO HAS BULBAR ALS. HIS BREATHING HAS GONE DOWN TO...

    DISGUSTED I'M TRYING TO HELP MY BROTHER WHO HAS BULBAR ALS. HIS BREATHING HAS GONE DOWN TO 43.HIS NEURO SUGGESTED A FEEDING TUBE. HE NEEDS TO MAKE THIS DECISION. ALSO , WE NEED TO LOOK INTO THE DIAPHRMATIC PACER.HE NEEDS TO BE TESTED TO SEE IF HE IS A CANIDATEFOR IT. IS IT FDA APPROVED FOR ALS...
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    diaphragm pacer

    HI EVERYONE. MY BROTHER WAS DX IN OCT. 2012 WITH BULBAR ONSET ALS. HIS BREATHING HAS GONE DOWN,I WAS WONDERING IF ANYONE HAD THE DIAPHRAGM PACER INSERTED.HOW ARE YOU DOING WITH IT/was your breathing low at the time of surgery? what is the whole process of testing like?DO YOU THINK IT IS WORTH...
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    Hi everyone, my brother has bulbar als. He ,s been going to an accupuncture dr. For about 3...

    Hi everyone, my brother has bulbar als. He ,s been going to an accupuncture dr. For about 3 months this dr. Claims he can slow the progression. My brother was dx. In oct. 2012.his symptoms include trouble swallowing ,slurred speech,breathing levels have gotten lower.he has him on some herbs...
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    Penney21 does anyone know anything about stems cells given in san luis, mexico? Is this a scam?

    Penney21 does anyone know anything about stems cells given in san luis, mexico? Is this a scam?
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    Neuraltus CEO and volunteers in DC last week

    sharon thanks for all your hard work.i'll pray that this will happAen for everyone with pals.also, you have my e-mail address.PLEASE LET ME KNOW WHAT I CN DO TO HELP . PENNEY21
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    cytokinetics

    Hi everyone, i haven't been on here in a long time. My brother was diagnosed with als in oct.2011'you are all warriors.it's amazing what you go through daily,and there's nothing tha t can slow down this cruel disease. It knocks the strength out of you.i've never seen anything like this. No on...
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    Hi everyone. My brother has bulbar/als. I'm frantic about his choking.it's so scarey.this...

    Hi everyone. My brother has bulbar/als. I'm frantic about his choking.it's so scarey.this morning he stated to cew his chewable citrus vitamin b. The pill didn't go down he started to choke on the sweet acid taste from the pill.i suggested that he not take this pill anymore.can you do the chin...
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    breathing levels hi everyone the more i get to know about this disease the more ihate...

    breathing levels hi everyone the more i get to know about this disease the more ihate itit seems like every time you go to the neuro it's never good news. i went with my brother today. he was just dx in oct 2012. he has bubar on set, trouble swallowing and his speech is slurred. i was...
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    Hi sequoia, i'm sorry i won,t be able to support you with the conference call. I have to take...

    Hi sequoia, i'm sorry i won,t be able to support you with the conference call. I have to take my brother to the neurologist on friday. Good luck , ihope there is good news from this. Let me know how you make out.hope tour doing okay. Penney
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