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  1. elemkay80

    New, Just received my Confirmation

    Wanda, I can only echo everyone else's sentiments here in saying I am so sorry you and your husband are having to go through this. You live in NC? Have you chosen a clinic yet? I live in Richmond, VA and while there is a great clinic at UVA only 1.5 hrs from me, I instead drive the 2.5 hrs to...
  2. elemkay80

    Limb Onset ALS - How did it feel in your legs/hands

    My initial symptom was my right index finger. I couldn't lift it up, couldn't point. So puzzling at the time. I would just stare at it, trying to "will" it to work. Makes me laugh now at how ridiculous it was :) It quickly became my right index and middle finger (I couldn't give a peace sign!)...
  3. elemkay80

    Chances of getting ALS in the 20's

    I can't attest to any of the statistics out there, but I'm 28, diagnosed at age 27. I was told early on that it was real unusual but in doing more readings and talking with my neurologist, I don't think it's as uncommon as originally thought. In fact, there is a type of ALS - "ALS 4" - that is...
  4. elemkay80

    Forever and a day!

    So I realized today that it's been almost 3 months since I last logged on! So I come bearing news..... I'm pregnant! :-D About 6 weeks so far, but very excited - and very symptomatic - hah! The morning sickness is starting to make itself known and I've never been more tired, among other things...
  5. elemkay80

    How Slow Is Too Slow?

    Can a sticky be posted somewhere that says "If you have pain or numbness/tingling, you do not have ALS." Eh. I'm feeling spiteful today.
  6. elemkay80

    Thoughts on Clincal Trials

    I don't have experience with any related to ALS, but I did participate in one about 6 years ago for that birth control med, Seasonale - the one that gave you a period only 4 times a year. The trial was the last one being done before it would get FDA approval and the trial lasted for 1 year. It...
  7. elemkay80

    Lost... Need advice

    I second the suggestion of Al-Anon. My mother was an alcoholic for many years (sober since I was a teen, though) and I have a couple of loved ones who are either addicts or alcoholics. I started attending Al-Anon early this year and found it to be the best thing I ever did. I learned to "detach...
  8. elemkay80

    New? Introduce Yourself - Say Hello

    Hi Danijela, You private messaged me and I tried to respond, but I don't think you're allowed to get messages yet. If you want to send me an email, we can correspond that way - elemkay80 @ gmail.com Look forward to hearing from you! ~Michelle
  9. elemkay80

    Finally confirmed...

    ptich, Thank you for your concerns, however I have already thought extensively about the risks vs benefits of having to delay any pharmacological treatments (research or otherwise) while pregnant. It was also something my neurologist and I talked about, and he agrees that if having a biological...
  10. elemkay80

    Finally confirmed...

    Thank you Brenda & Rose for the encouraging words! Brenda, I will certainly miss the ICU a LOT! I've worked in the same one off and on for 5 years, since I finished nursing school and everyone there feels like family, so it's mildly depressing to leave, but I'll still be in the same hospital...
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