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  • Users: Lixen
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  1. L

    Worried for my Husband

    He's been symptomatic for over three years, during which time he's seen numerous neuros and had four EMG's that were normal. It doesn't matter that they didn't test his tongue area, if ALS were on the radar something would have shown up on the limbs that were tested. Did you take the time to...
  2. L

    Doctor assisted suicide

    Dave K, I am sad to see you go but I understand why you feel the way you do. I wish you would reconsider as I think your contribution here has been invaluable on many fronts.
  3. L

    Insights welcome- starting the journey to diagnosis

    No one here is going to validate your irrational fear of ALS absent any clinical findings including the professional medical opinions of the MD's who have evaluated you. You have not described symptoms consistent with the presentation of ALS despite your steadfast belief otherwise. Not one.‎ If...
  4. L

    Concerned - Seeking Group Wisdom While Awaiting Tests

    If there are certain guidelines required for posting a reply in this forum (limits on quoting text, what's perceived as helpful vs. counterproductive, etc., then perhaps this area needs to be restricted to only certain moderators or members when it comes to replying. Respectfully, while your...
  5. L

    Pulling rank

    I won't address the therapist issue directly because I don't know the legalities and/or if your PALS has given her permission to discuss his medical status with his biological family. ‎ Aside from that, do you have a right to feel the way you do? Sure. Is it fair to have to deal with...
  6. L

    Concerned - Seeking Group Wisdom While Awaiting Tests

    "I recognize and understand that these are irrational worries at this point, but they increasingly occupy my thoughts and are bleeding over into consideration about having a third child. I was presented last week with a career enhancing 120 day detail opportunity at work and..." So, I'm going...
  7. L

    New Here

    You don't have ALS. Once you have the EMG and it comes back normal I trust that will be sufficient enough to rule out ALS in your mind? If not, you may want to spend some time addressing your admitted somatoform disorder/issues. That's the one thing that actually explains every single one of...
  8. L

    Neurologist Scheduled May 18th

    Riggz, ‎ For what it's worth ProfeJ's first post was very concerning to me personally and it came as absolutely no surprise when he was diagnosed. NONE. To be honest with you I would have been shocked if he hadn't been diagnosed. You have NOTHING in common with him. I can promise you he would...
  9. L

    neuro Appointment this week, kinda nervous

    Keep us posted & good luck.
  10. L

    Tmj

    I just. I just can't believe you're still here.
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