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    Myopathy

    Keane, My last EMG revealaed signs of myopathy and i just had a muscle biopsy that is being evaluated by Duke University to look for mito mutations. Can you tell us what other tests you had that were abnormal? Bloodwork, emg, etc.
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    Babinski Sign always significant?

    I second that. I had a Hoffman's sign (related to Babinski's) and had an emg indicative of a myopathy and a muscle biopsy that was completely normal. No als here.
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    URGENT-Creatine Kinase

    Interesting. MY CK level has gone from 40 to 74, increasing each time that i have had it tested (5 times in last 6 months). My bilirubin levels were also every so slightly elevated. I had an EMG in all limbs. The first two were clean. The last one indicated a myopathic pattern. I have brisk...
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    Let's Throw In A Droopy Eyelid Too

    My doctors noted bilateral ptosis (droopy eyelid) at my last appt. It is not visible to me, but they poked around my eye for a while and said I had it. I know how you feel, adding it to the laundry list huh? However, my doctor said that droopy eyelids are common in several myopathies so maybe...
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    question

    WOW! What a difference one doctor visit makes guys~ This time single fiber emg was NORMAL. My REGULAR EMG was abnormal and my doctor said that the pattern of the abnormality is the exact OPPOSITE of a pattern that you would see in als. My doctor said "You do not have als, it has now been...
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    This whole 2nd EMG thing

    From my experience, Id wait until you have some clinical weakness to get the second EMG. They aren't free.
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    question

    Thanks for everyone for the encouraging PMs. My family and I appreciate all the advice you all have given us. Second Duke appt is this Thursday. After corresponding with the doctors (who told me to call when new symptoms arise, or something changes so that they can document it), they are now...
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    Value opinion

    Going to Duke definitely made a difference for me. It was there (with fresh sets of eyes) that I was able to explain everyhting I had been going through, and enough time had elapsed that my symptoms were a lot more recognizeable. The doctors really empathized with me and my family and assured...
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    difficulty swallowing with no muscle weakness - how tell als from myasthenia (yet)

    There are two blood tests for Myasthenia. The Myasthenia AB test, and the MuSK Myasthenia AB test. However, according to my doctor it is possible to have myasthenia with both of these blood tests remaining negative. There are other tests that are performed on weak muscles like the single fiber...
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    question

    I think it probably makes a difference that i had been seeing a regular neurologist, and this time i saw a neuromuscular specialist at DUKE. I actually saw three doctors and duke and each gave me a clinical exam and then one did a emg, and another did a single fiber. They were all pretty much in...
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