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  1. G

    Was misdiagnosed with BFS by head of an ALS center

    Right, so I was seen by a general Neuro who at that time said that he would bet his house that I didn't have ALS(although he documented gross fasics in the rear deltoid) The second neuro i saw was the head of an ALS center and he requested an EMG that was totally clean(i had no fasics during...
  2. G

    Was misdiagnosed with BFS by head of an ALS center

    Wrong. 1 out of 100,000 of every person get ALS every year. That mean's that if you live to be 100 you have a 1 out of 1000 chance of developing ALS
  3. G

    Was misdiagnosed with BFS by head of an ALS center

    There is no bottom line here. ALS is probably in of itself not even one disease but a category of diseases that manifest themselves alike. What I mean is that-- the causative factor in the pathogenesis of ALS can be numerous things... and that there are subtypes of AlS, such as the...
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    Was misdiagnosed with BFS by head of an ALS center

    I think the main difference between the new emerging cases of ALS and the so called "thousands of past cases of ALS" is that the internet gives us access to differential diagnosis, and we are therefore able to entertain possibilities very early in the course of a given disease. What I mean is...
  5. G

    Was misdiagnosed with BFS by head of an ALS center

    the given diagnosis of "BFS" is much different than giving someone a diagnosis of possible MND... as i agree that no doc is going to jump to DEFINATE MND that early, that WOULD be wreckless... but to write it off as BFS when i presented with widespread fasics and difficulty swallowing (visited...
  6. G

    Was misdiagnosed with BFS by head of an ALS center

    i'll tell you my story and I will also scan copys of my doctors dictations and test results so that you all can see proof. History of fasiculations (widespread) approx 6 months prior to first EMG which was normal. Neuro exam normal at that time. Only subjective loss of strength. Now 12...
    • Greensun12
    • Thread
    • age als atrophy bfs diagnose diagnosis early emg insurance muscle story symptoms test treatment
    • Replies: 57
    • Forum: Could this be ALS?
  7. G

    Clinical exam notes from NEW neuro...**long**

    Mine appeared after a cervical injury along with a past history (about 6-8 months prior) which was positive for anabolic steroid use as well.
  8. G

    Hi Im writing you because i read your post concering the p90x post. I have the exact same...

    Hi Im writing you because i read your post concering the p90x post. I have the exact same situation as you, i injured my c-spine doing the exact same yoga pose, and was in intense pain thereafter for 2 months. couldnt move my neck. Fasics started about 3 months after and swallowing...
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