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  1. Gschamb

    bulbar onset diagnosed 8/2024, has anyone passed away when they could still walk and use their arms?

    My bulbar started in March 2024, but I had a precious year of testing. My legs and arms are good, but I cannot eat, talk and slowly losing my availability to drink. I have a lot of pain in my muscles, but only at night..I didn’t have a feeding tube put in, maybe I should have..
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