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  1. DebbieRD

    Gastric Overflow

    Thank you. I'll see if I can do that.
  2. DebbieRD

    Gastric Overflow

    Hmm thank you. I called the formula company and they offered me an attachment for the leak, but it adds extra weight and bulk.
  3. DebbieRD

    Gastric Overflow

    Thank you. I do have a dangling version, no clamp. It's a "y" shape. I'm thinking maybe I have a clog and will try remedies.
  4. DebbieRD

    Gastric Overflow

    Thank you
  5. DebbieRD

    Gastric Overflow

    Half of the time when I open the tube flap I get a combination of air and gastric contents bubbling out. The intensity is getting worse with more spouting. Makes a mess. Is this normal? three weeks ago I switched to 90% tubefeed from about 50%, a big change. I've been searching for help and...
  6. DebbieRD

    PEG fell out

    Thank you. Yes from now on i will always have a spare. Yes good idea to teach my peeps.
  7. DebbieRD

    PEG fell out

    Im writing for emotional and sharing support. Today my PEG fell out. What a drag! In an instant so much unpleasantly unfolded: surprise, scrambling to an ER, having to hurry when i cant, uncomfortable with the unknown. It was not easy for the doctors to get a new one in. Second attempt worked...
  8. DebbieRD

    Right to Try

    Thank you for this warning, I already have GI issues, was going to start Tudca but now will wait til I learn the GI side effects. Can someone write what can occur?
  9. DebbieRD

    Husband was just diagnosed...I'm so worried and not sure how to help.

    Hi, I am a PALS with Bulbar onset and a dietitian. Have you husband see a speech therapist familiar with ALS and a dietitian. Learn more about what this choking is and is not, what to do when it occurs, and what foods and drinks can trigger this. Don't wait to see these clinicians. And...
  10. DebbieRD

    Adapting to Trilogy with Bulbar symptoms

    Hi, I had the same happen to me. This was my first machine ever. I was so freaked out that I could not bring myself to even try it again. No compassion or advice from the person who set me up. Just watched me struggle.
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