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  1. L

    Peg tube info. wanted, please

    Hi Greg, I'm just reading your post, but I really hope you listen to your doctors advice and go through with the peg tube. My mom just got one last month and I wish she would have gotten it earlier. I saw her at Christmas and didn't see her again until Easter and I was shocked by how much weight...
  2. L

    Any Helpful sleeping tips

    My mom is in a similar situation and we just got her a pillow wedge from the medical suppy store. She picked out the largest size I think 15" or so and it looks like a mini ramp in her bed. But this allows her to prop her pillow on it and it is easier for her to get up from the bed since she is...
  3. L

    Advice for Private Care

    Do you have more information I've talked to a couple doctors regarding the pump for tube feeding and I've done some basic internet searches, but I'm not as well educated on the details of pump feeding as I would like to be. We specifically talked about using it overnight which I'm told would...
  4. L

    Advice for Private Care

    My mom has Bulbar ALS and recently has lost so much weight she finally agreed to a feeding tube. This seemed to be the perfect solution, but it has made her more dependent on care from others as she can't feed herself due to the lack of strength and coordination in her arms. The feeding schedule...
    • lovinglife
    • Thread
    • advice als bulbar bulbar als falling feeding feeding tube health insurance medicare therapy treatment
    • Replies: 6
    • Forum: People with ALS (PALS)
  5. L

    Any updates on Low Dose Naltrexone Use

    I'm doing research for my mom. Her Dad wanted her to consider trying Low Dose Naltrexone. I've done a couple searches on the forum, doesn't look like a miracle cure from what I've read, but some people were trying it out. All the posts are about a year old now. Anyone try it? Any updates? My...
  6. L

    New to this and looking for friends who understand...

    StGeorge hang in there What you do day in and day out is amazing, but you need to take care of yourself too. I'm glad you have family and friends nearby. Even if you don't want to talk about your daily concerns with ALS it is good to have a diversion. And sometimes it is easier and feels safer...
  7. L

    New to this and looking for friends who understand...

    Hi there Unfortunately I too understand what you are going through. I think it is great that you are moving back home to take care of your dad. I wish I could do the same. But my mom is still working (her true passion)- so for now we are dealing with this long distance. My mom has Bulbar ALS...
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    Button Hooker Recommendation

    Info on the Button Hooker Hi- Sorry I'm just getting a chance to get back on the forum. Well actually I've just recovered from an illness, but it was nothing compared to what this forum is about. Brenda I would love your input as there were a couple options to choose from. You may have sent me...
  9. L

    Anyone know anything about Dynavox Palm 3

    I thought it was pretty neat But my mom gets frustrated with it because she is still learning. It is like a little computer and I think it has MS office so it functions similar to the operating system most of us use. I noticed that she still prefers to try to talk and hope someone will...
  10. L

    Button Hooker Recommendation

    Hi- I am shopping for my mom for a button hooker (mainly for her jeans and pants) and I read the post mentioning Sammons Preston. I was looking at their website and they have a couple different versions. I can call the company and ask more detail, but is one version better than the other- from...
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