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  1. R

    Life update

    I was playing chess with my dad just now. He loves chess! He's always been really good at it and he's also super competitive haha. He was beating me easily at first and it seemed really obvious he was going to win. Then somehow I made this epic comeback and ended up winning! I played a great...
  2. R

    Overwhelmed

    Good luck with the sale and let's hope it's good riddance to SIL!!
  3. R

    Anger and sadness

    ctdollar, I'm new to the forum and just saw your post. I'm so sorry for your heartbreak. I feel your pain - my dad also has ALS. He was diagnosed 2 years ago and it's so hard seeing him deteriorate day by day. How old is your dad? When was he diagnosed? Your post was a few weeks ago. How have...
  4. R

    Upset Rant

    Hi AKNate, fellow Sydneysider! I know this is a bit delayed (just joined the forum) but I can completely relate to how you're feeling! My dad was diagnosed 2 years ago at the age of 57. It started with weakness in his R hand and it stayed that way for a good year or so. Then within a matter of...
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    A Place to Speak My Truths

    Lenore, I'm so sorry you find yourself here going through what you are, but you're absolutely right - this is THE place the speak your truths. Thank you for sharing your story and literally summarising exactly how most CALS feel most of the time! This disease is out of anyone's control and it...
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    Struggling

    Hi Sue, I'm new to the forum and also a CALS (my dad has ALS). When I read your first post on this thread, it reminded me so much of my mum! She often feels EXACTLY the way you described it.. we all do really. I'm so sorry about your mug :( you're right - it's much more than just the mug...
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    Overwhelmed

    Sooner, I've just read through this thread and I am so sorry for what you're going through! It's so much to deal with, as if MND wasn't enough. It's good there's a violating order in place now... this ratbag needs to be out of your lives for good and hopefully the police can take care of that...
  8. R

    Life update

    Thanks everyone for your replies! It really does help talking to people who understand what I'm going through. @ Manhattanite: thanks for your advice! It's interesting you mention distinguishing thoughts related to loss and grief versus those related to self-pity and fear. I think I managed the...
  9. R

    Life update

    Hi everyone, I haven't posted on this forum in over a year now and I've been missing it in my life! My dad was diagnosed with ALS 2 years ago (age 57), and it was around mid-last year that I discovered this forum. It allowed me to connect with people also affected by the disease, who understood...
    • RSV Aus
    • Thread
    • advice age als back breathing dad diagnosed early family feeding food happiness heart hope life reading sleep stages support swallowing transfers trip update wheelchair
    • Replies: 8
    • Forum: Current caregivers
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