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    New CALS - totally broken-hearted

    Hey girl, I read your post, I could almost hear your voice. I share these feelings with you, every day, every night and the screaming inside some days dont stop. I shake now, when some things happen....thats new to me. For years, I was made of iron, there wasnt anything this only child, wife...
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    Friends?

    Hi, Thank you for taking what little time you have to read my rant. Believe it or not, other than hubby and his writing board, your the only one I talked to today. This is not my first Rodeo, by a long shot, but I will tell you for dam sure, it is my last.
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    Friends?

    Hi everyone- I need, for some stranger reason, to get an answer to a question about disappearing friends and family- too long in my own head trying to work this out so its open forum time. Husband has ALS, at home, has refused vent- G tube- and made me promise no hospice. So its him and me...
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    Just curious, does anyone's insurance not cover Riluzole?

    Nope, wouldnt cover us. I went thru Good RX website to be able to afford it.
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    Looks like my only option for this saliva problem is Botox. Pros/cons from someone who knows?

    So glad to find this tread. Glyc failed and put him in heart failure- Scapolomine, he went bezerk and urine turned DARK amber and couldnt pee more that 2oz, Im afraid, now they want botox, think we are going to pass
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    Controlling saliva

    Hi, Need help for my husband- how do you control the excessive saliva with Bulbar ALS. They gave him all sorts of meds, but the only one that worked is a beta blocker and dropped his heart rate suddenly- Ended up in hospital. ANYTHING U SUGGEST is helpful. Regards, Annie
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