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  1. D

    Updates and question about stride progression

    Wow, you guys are great. Thank you so much for all of your help! It sounds like checking out some hiking sticks might be a good start for me. I do occasionally stay in contact via email with the first neurologist I saw (from way back when it was thought to be just a peripheral nerve problem...
  2. D

    Updates and question about stride progression

    Thanks Lauren! Your post was really helpful. Having a walking stick wouldn't be as bad as a cane, so maybe I'll look into that. I have problems with walking mechanics as neither of my ankles moves. So I can't really force a heel-toe mechanic, nor can I rock back on my heels or go up on my toes...
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    Updates and question about stride progression

    Good morning! (or Good night, depending on where in the world you are ;) ) I feel like I am finally getting somewhere in my diagnostic journey. I have "changed" my health care to a different region of Spain and after an appointment in general neurology, have been derived to the neuromuscular...
    • dancergymnast
    • Thread
    • assistive devices back bed diagnosed falling health hours neurologist neurology night physical therapy pls problem problems progression question about symptoms symptoms therapy thumb work
    • Replies: 11
    • Forum: Primary lateral sclerosis
  4. D

    Toe Tapping Spasticity

    This happens to me too! Although I'm not on any medications to help with spasticity. Doctors wont do anything here til I have a proper diagnosis, which none of them seem interested in investigating...
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    Finding a neurologist who knows...

    Reading some of the posts in this series has been very helpful. Thanks so much for posting it. On a side note, looks like I won't even consider flying across the pond to Mayo at Christmas-time like I had been debating. This girl had just as much trouble with them as I've had over here...
  6. D

    Finding a neurologist who knows...

    Hi everyone, I am still stuck in a diagnostic disaster. I am an American living in northern Spain, and Spain has both private health care and public (free) health care. I started my journey in the private system because it goes faster and it all started with just an ankle problem. In June this...
    • dancergymnast
    • Thread
    • ankle back clinical diagnosed diagnosis emg free health lead medical motor neuron disease neurologist neurology pls problem questions testing wrong
    • Replies: 9
    • Forum: Primary lateral sclerosis
  7. D

    new Upper MND diagnosis

    So I was admitted to the hospital to have more testing done and to have other tests repeated. At the end, I was undiagnosed with UMND and rediagnosed with a possible psychosomatic conversion disorder. My doctor said that I don't have a clinical presentation of UMND (wait, WHAT?!) and that...
  8. D

    new Upper MND diagnosis

    Hey everyone, Thank you so much for the support. I am going to see a neurologist in another state tomorrow, who works in a partner hospital of one of the leading motor neuron disease teams in Spain. Not expecting another opinion, but hoping to make a connection for possible future clinical...
  9. D

    new Upper MND diagnosis

    Hi Suzannah, Thank you so much for your reply. I'm sorry to hear about your diagnosis frustrations, especially coming from top doctors. It's funny that you say "don't fall," because all of this madness for me started with when I broke my tibia in a fall. After the bone healed, I was left...
  10. D

    new Upper MND diagnosis

    I'm hoping to make some connections here. Any other young UMN cases out there? By the way, I live in Spain, but I'm from Michigan.
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