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    Are EMGs painful

    Thank you all for responding! I appreciate all of your responses. I have not yet decided if I will volunteer for the EMG. I guess I first have to find out if I am even randomized into the research study. I really do want to help, but to be honest I have some concerns and the EMG is my...
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    Are EMGs painful

    I must say this may be the most intersting helpful post(s) I have come across. I have to comment and I have to ask. First my comment. I seriously wonder if the amount of pain has to do with how progressively affected you are by the ALS. The one post (sorry don't remember who you were) you...
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    Living alone

    Hello Cukita, I don't know that I will be of any help to you but I noticed that no one has yet responded and therefore I want to make sure you get a response from me. Have you contacted the MDA? The MDA was incredible when my father had ALS. I don't know that they will have someone to help...
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    familial connection

    Hello! My family as well carries the familial ALS. To be more specific we carry the A4V SOD1 gene mutation. If anyone is still looking share on this topic, I would love to do so. You don't necessarily have to know if you have this mutation; I would love to talk to you even if you simply have...
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    Living alone

    Sorry, I have to comment. And, please realize that I am not trying to argue with anyone or offend anyone. One thing I have learned through reading all the posts I've seen is that this disease has SOOOO many variations. I can't believe the differences that sometime people have. With that...
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    Anyone with Familial ALS?

    Good Morning! Thank you for starting this thread! I have wanted to start one for the exact same reason and apparently I don't have the permission or something. Anyway! I can TOTALLY relate. My family also carries the A4V SOD1 gene mutation. There have been 7 total that have already died...
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    Living alone

    Tonya, It appears that there are a lot of variations in the disease; however my experience with my family was that the progression of the disease went fairly quickly. Therefore my assumption about the doctor saying she should not live alone would be in the fact that as she progresses there may...
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    Cure and prevention.

    Hello Everyone! I am new to this whole ALS Forum. I was looking for a support group where there are people who can relate to some of the things in my life and ALS is one. At the moment I do not have ALS however my family carries on of the gene mutations being defined as A4V (which is the most...
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    My Dad: How close is death?

    Cheryl, I don't know that I have an answer for you. However, I also helped take care of my father when he was dying. He fought it for as long as he could, but died Dec 4, 2004. I know how hard it is to watch them daily and also how you much you feel like you need and want to be there for...
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