Gee, thanks Atsugi for all the detail since my head's spinning trying to coordinate everything and trying to duplicate as best as I can the current Mayo services (Boylan diagnosed) they are receiving while living in Jax into the Orlando marketplace. So it sounds like for symptom/medication...
Atsugi, did you have a local neuro? In process of moving dad to Orlando (hopefully in Sept.) and I just assumed we would need someone close (esp. when transportation problems start happening). Did you deal with only VA neuro in Tampa and how difficult was it to contact them 1 1/2 hrs. away in...
Yes, he was in the Navy 22 yrs. And, we are already aware of the VA benefits; he got his paperwork sent in(in June) though it can take months to get approval. But compensation will be retroactive from June. Yes, we're fortunate of the extra benefits Congress appropriated for this aweful...
@Atsugi This is very good insight into what's needed and really makes me feel like it's probably the right decision having my parents make the move to Orlando near my sister, though it's away from the Mayo, only because I'm getting the feeling this is really an intense effort with many people...
Thanks very much; not gonna lie -- it's a scary "journey" from what I've read and my parents are normally very strong through adversity but think this thing is really gonna be a buggar. They have a strong faith and have had a wonderful, rich, 55 yrs. together and this is just one of those...
Barbie--I understand you are from Orlando and could really use some recommendations on any care you are pleased with for your husband's care since my sister and I are hoping to move dad and mom to Orlando to be near my sister (in Sanford). Currently living in Jax but believe this is not the...
which PCP, if I may ask, did you find who you were happy with for your mom's care? We are in the process of most likely moving my dad from Jax (early ALS stages) to Orlando to be near my sister. I will note the name of your neuro you like (assuming he takes Medicare? or no?) but would so...
Thank you all sooooo much for your responses! You have no idea how much your insights have helped -- I have sent these all to my and dad to read. Every single one commented on the necessity to have immediate family close by and the difficulty in coordinating care long distance. Co-incidently...
My dad (80) was just diagnosed by Mayo Clinic, Jax. Mom is 77 and both up until this point have been very fit, healthy and independent. Both have lived in Jax for 20 yrs. and have been patients of Mayo Clinic for many years and really have enjoyed Mayo's healthcare system. They are fortunate...