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    Dad lost the long hard battle..

    Dear Friends, With great sadness I want to share with you that my dad who had been living with ALS for 3.5 painful years has finally lost his battle 3 days ago. It was a very long and difficult last 3 years. I remember every stage of his progression from normal to comatose over 3 years. We have...
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    Back pain in bedridden condition

    I know there are probably million reasons to cause pain, but dad often compains about back pain especially when on side. He has been bedridden for almost a year now. Is there a chance his condition might increase his suceptibility to things like slip disc which could cause severe pain? Of...
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    Long term suffering from ALS

    I just wanted to get perspective from caregivers who have seen their patient suffering from ALS for very long time (several years). My dad is suffering for 2 years now and have been is close to total paralysis for last 6 months. Vent is only keeping his breathing going. I guess he has some...
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    Communicating in advanced stage

    Currently Dad is close to advanced stage. He can't use his right hand whatsoever. His left hand is barely functional. Currently he just communicates by moving his fingers on the side of the bed to write one alphabet at a time. But he fear soon that may not be possible either. Needless to say...
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    Advice needed

    Hi All, I have posted on this forum a few months back about my dad's als and I am back with questions. Seems like he is progressing faster than average. In last 9 months from being able to walk a mile to needing a wheelchair, no speech and now trach and feeding tube. Pardon me if I am repeating...
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    Severe muscle twitching

    I have been having muscle twitching all over my body. In the last 6 months or so there is not a muscle in my body that has not twitched. I was very concerned initially particularly because my father has ALS. There is no family history but it did make me very anxious which only fueled the...
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    Advice needed from experienced folks

    Dad is becoming increasingly weak every day. He is barely able to walk now and his back and leg muscle feel "tight". Is there any way to get relief ? One guess of mine is he is eating less due to swallowing issues and because he can't taste food well nor does he feel hungry. May be his body is...
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    We have noticed increased cough in Dad especially when he is lying down. He coughs almost continously when he is lying on his back. What do we make of these symptoms ? If a breathing aparatus needed soon? When do we consider a trach ? ANy advice will help.
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    Dad's mental state

    Just wanted to share my situation with others to see if you have had similar experiences. Dad is having ALS for almost a year now and his speech is now barely understandable. He gets quite angry because we cannot understand him. He screams the second time when we cannot understand the first time...
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    ALS and heredity

    I have read about 5 to 10% of all ALS cases are inherited. What does that mean? that 10% of people who have als, their children will get als too ? I am looking at my twitches quite differently after I heard of my dad's diagnosed. Frankly its freaking me out and i am considering getting it...