Hi Al...thanks for the insight into why it may be tough for my mom to want to get out. It's hard to think like the person with ALS rather than the caregiver...I have started to notice handicap accessibility in places but I didn't think about the "if I drink something, then I have to go to the...
Crystal, thanks for responding. I hope you had a good Thanksgiving. We had a pretty good day although mom couldn't eat any turkey really...it's getting harder for her to eat anything but soft foods. I talked to her last night about starting to use the PEG for at least some supplemental...
Thanks for the website Pearl -- I'm finding good info there!
The social worker is coming on Monday -- hopefully I'll get some more info from him and some answers. I'll post anything good that I find out after that meeting.
Leslie
I am a caregiver for my stepmom who was diagnosed with ALS in August 2006. Her symptoms started mainly with speech and swallowing -- she had a stroke 18 months prior to her diagnosis and had lost use of most of her left side so some of the leg/arm symptoms were masked by the stroke. We lost my...
advice
als
alsa
arm
caregiver
confusing
diagnosed
diagnosis
father
health
helpful
home health care
information
life
love
medicare
reading
speech
stroke
swallowing
symptoms
wanted
worry