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  1. T

    Atypical presentation?

    The ALS clinic wrote, “consistent with UMN dominant bulbar ALS” in the progress notes and “IBALS” on some disability paperwork. Bad news, but hopefully as slowly progressive as those terms suggest.
  2. T

    Atypical presentation?

    EMG/NCS complete. Neurologist notes: This is an abnormal study. There is evidence of: Chronic denervation-reinnervation changes in the genioglossus without neurogenic changes in the extremities. While the study does not meet the electrodiagnostic criteria for motor neuron disease, this finding...
  3. T

    Atypical presentation?

    I forgot to mention my MRIs. I’ve had two cranial MRIs (7 mos apart) - both were clean. I also had a cervical MRI, which showed age appropriate L4/L5 stenosis/ rediculopathy.
  4. T

    Atypical presentation?

    My EMG is in a month (a needle in my tongue - ugh!). I understand ALS weakness is “insidious” but when you first notice it, it seems “acute”.
  5. T

    Atypical presentation?

    It’s been almost two weeks without a reply. Did this post fly under the radar or is it so perplexing that no one has any input? I’m understandably nervous regarding my upcoming EMG/NCS and I’d appreciate any informed opinion.
  6. T

    Atypical presentation?

    I had the flu followed closely by relatively mild COVID almost a year ago. About two weeks after COVID recovery, I started to notice an occasional, slight slur/dysarthria (a single word every couple of days). After about a month, it progressed to a point that my wife heard it and it progressed...
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