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    Waking up with coughing ....

    Questions about coughing. During the night, I awoke and was coughing, but instead of asking my husband to help with the cough assist, I let myself eventually go back to sleep. After I awoke, four hours later , the cough wasn't there. I used the cough assist and my breathing had no signs of...
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    Best practices for sleeping with paralyzed arms?

    Just as Kim described, I sleep on my back with each arm upon a pillow.
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    Constipation

    Excellent tip from Kim about ample water for Miralax to work. I began having constipation while using Miralax. My doctor assured me that the consumption of a lot of water was necessary. I then doubled my water and soon I needed to reduce my Miralax dosage, it was working too well!
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    Healey Trial - 2 Drugs Tested

    I was placed in regimen D, and participated in the optional lumbar punctures. I hoped to help with their research. Advice is to be well hydrated day before and day of and consume caffeine afterwards. I had a mild headache after first procedure, so the second time I drank a Coke sooner...
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    Saliva, mucus

    Yes, When I first mentioned excess saliva, my neurologist started me on 10 mg originally . After several months I needed an increase.
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    Saliva, mucus

    My doctor prescribed Amitriptyline 10 MG TABS for me to take at bedtime. I am currently taking 1.5 tablets, so 15 mg. For a few days I tried 20 mg, but felt groggy the following morning. The 15 mg works well. It does make sleepy at bedtime, so it's easy to fall asleep.
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    Hospital bed recommendations?

    Anyone have a hospital bed recommendation? The one our insurance covers, only hinges near my neck , not at the waist. 24inches from hinge to top of bed. Ridiculous!
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    Peg Tube covering

    My first Peg with dangling tube was placed one month ago. It's currently covered by a binder with velcro. The home health nurse told me most peg patients continue to wear the binder to protect the peg cord. It feels like I'm wearing a corset. Please suggest any other options. I can have...
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    Oral Radicava

    I was just notified today of the insurance denial (I'm private insurance as I don't qualify for Medicare). The insurance said my AFS scores were not submitted, so hoping my neurologist's office will get things straightened out.
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    Newly diagnosed, wondering how to tell relatives and others

    Hello! I have been reading on these forums for the past 4 months while my ALS Specialist Neurologist at Ohio State Univ. told me ALS was possible, then probable. The information here helped me feel more prepared for the visits with my neurologist. Now I am diagnosed, and have been told I am in...
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