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    Can anyone share your experience with Dynavox Voice?

    My brother's ability to speak is nearly gone. He already has a Dynavox and uses it by twitching his eye or nodding his head to turn lights on/off etc... the problem is that this system hasnt been all that great with frequent malfunctions or adjustments required. I'm a bit apprehensive to pursue...
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    Is this the end?

    Sandy, I missed your latest message and am very sad for your loss. I've been only able to post a few messages regarding our voyage with my brother and see the strength you've had to share your trials for a very long time. You are an incredible lady, a gift to your father. He absolutely...
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    Is this the end?

    Continue to stay strong Sandy and know that your Dad is comforted knowing you are at his side. God speed
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    don't know what to do now...

    Hi Nightwolf, please know that it is OK to be afraid, all of us are in the beginning. Whether patients or family, we are all afraid of what we do not know and what might lie ahead. However, we later find, as I'm sure you will to "IF" your diagnosis is ALS, that we draw courage from deep down...
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    You Go Jeff/VETS

    Fighting for VETS? I'm with you... My brother has had ALS for 20 years. He served 6 years in the Airforce in the late 1980's. It was only recent that we won veterans benefits for him after being sick for so many years. We've been able to build him a handicapp accessible home and now have the...
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    Husband being diagnosed with ALS

    Nourishment for Bulbar form of ALS Hi, my brother is a 20+ year patient with ALS whose symptoms are now progressing into his throat and tongue. We found a web company www.4webmed.com, that you can purchase containers of juices and drinks etc....already mixed with Thick-It. My brother luvs...
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    New? Introduce Yourself - Say Hello

    It's OK Lou, we all feel this way at times. My brother has had ALS for 20 years, there are times I cant stand the smell of the suction process which is my signal to take a hike and GET someone to take over. Listen to your mind, it will tell you when you need to take even a 5 minute break but...
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    Hello... new member looking to talk.

    Hey Carlos! I'm new to the forum also. My brother was diagnosed with ALS when he was 28, we just celebrated his 47th b-day! I'm happy to share anything with you that might help you.
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    New? Introduce Yourself - Say Hello

    Hi~ Hello, my name is Geralyn and I'm the youngest sister to my brother Rick who has ALS. My bro was diagnosed when he was 28 after serving 6 yrs in the Air Force. My brother has just celebrated his 47th birthday! Yes, his 47th. He has been on a vent for at least the last 10 years. To those...
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