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  1. Fusia

    Things that helped you as a PALS

    I had hand onset, so these are the things that were most helpful to me: – I'm in total agreement with Kim, my Toto bidet is a game changer. And, along the same line, learning to ditch the underwear and just go commando. – A signature stamp. I got this soon after I was diagnosed, so I can still...
  2. Fusia

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday]

    After a s**tload of snow late last week and below zero temperatures over the weekend, our weather is getting back to normal now - daytime temps in the 50s with lots of sun. So, looking forward to getting out a little bit more in the coming days. I'm making progress on transitioning to a new...
  3. Fusia

    Need Suggestions for Reading

    Already some great suggestions here. For reading, I use an iPad attached to a Brydge keyboard (the keyboard is quite heavy, so serves as a stand for the iPad, and the iPad can be adjusted on the hinges - I really don't use the keyboard to type anymore). I use the Kindle app on the iPad, and use...
  4. Fusia

    Dance, Darcey, Dance!

    Jim, thank you for sharing Darcy's tribute. It's clear that she was cherished by many, especially you. I'm so sorry for your loss. May all of your wonderful memories of her bring you peace.
  5. Fusia

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday]

    Good morning to all you Wednesday updaters. First, I have to say to Jesse that Mac is adorable. I've never had a cat, but looking at him just warms my heart. And, Rocky is so handsome. It looks like Rocky thinks he is in charge, but I expect Mac will turn out to be the "top dog". It's been a...
  6. Fusia

    Webcast on AMX0035

    The ALS Association Evergreen Chapter had a webcast yesterday, Review and Update of AMX0035 in the Treatment of ALS, presented by Dr. Michael Elliott. I attended and thought the information was very well presented and informative. Here is a link to a recording of the webcast: .
  7. Fusia

    Advice on caregivers schedule for PALS living alone

    Thanks, everyone, for some great information. I especially like Laurie's advice to find someone that can be quiet instead of filling all of the space with talking!
  8. Fusia

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday]

    It definitely has turned fall–ish here, most of the trees have lost leaves and it has turned very windy, rainy, and chilly today. My brother and sister in law left a few days ago, after visiting for almost 10 days. While they did get quite a few little projects done for me around the house, 10...
  9. Fusia

    Magnetic charging/data transfer cables

    Ha, binder clip, I didn't think of that! These are pretty slick, though, and quite inexpensive. Should work for me for a while…
  10. Fusia

    Magnetic charging/data transfer cables

    It's now almost impossible for me to insert a charging cord into the charging port of my iPad. I recently found these magnetic cables on Amazon, where you put a little charging tip into the charging port, which you just leave in the device. Then, you use the magnetic charging cord to connect to...
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