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  1. U

    CK levels

    Have a look here : [URL="https://alsnewstoday.com/2016/06/22/20160621als-patients-blood-inflammatory-markers-correlate-with-disease-severity-study-says/"]https://alsnewstoday.com/2016/06/22/20160621als-patients-blood-inflammatory-markers-correlate-with-disease-severity-study-says/[/U Udo
  2. U

    trying to keep the breathing muscles

    https://www.researchgate.net/publication/232085333_Can_inspiratory_muscle_training_increase_survival_in_early-affected_amyotrophic_lateral_sclerosis_patients Here comes hopefully the link. Udo
  3. U

    trying to keep the breathing muscles

    There are a lot of articles about of breathing articles, but this one decribes the breathing exercices in detail. Udo
  4. U

    fysiotherapy YES it helps (in my case)

    Very interresting, can't you cpoy and paste the content to google translator ? If these pages are scanned, you might try to the rtf format, as the content is better to copy and paste it. Udo
  5. U

    Can having cough cause respiratory failure?

    I asume that these pO2 val ues have been measured during daytime , values during nightime below 90% should be worried.. When she did get the pCO2 measured from the arterical blood and what was the % ? Udo
  6. U

    RCH4 Drug stopped by Dr. Bedlack

    I must protest at some comments here. My decline was 1.3 ALSFR points per month over 2 years. Since starting this drug I am stable. My decline has completely stopped. Due to untrue SCAM headlines, my drug supply will end due to lack of funding. A moderator comment: this post belongs in Rants...
  7. U

    How Many are still taking Tudca?

    Hi Kim, I take 1 g per day for financial reasons. Futhermore I think Mike took Tudca before he passed away. Udo
  8. U

    Eye Gaze tech, who is using what?

    I use the Eye X from Tobii, and I am totally satisfied . Beside from the Hardware requirements ( USB 3, at least Intel I5 ) and using the freeware Optikey, a great program with endless adjustments in the mangement console, you can realize for less then 200 bucks. Udo
  9. U

    CBD, THC, etc Dosage

    Hi Greg beside the slow progression did you notice any other effect on spacisty or pain ? Udo
  10. U

    Creatine Kinase Total Serum Level

    By chance I found the following study: Creatine kinase enzyme level correlates positively with serum creatinine and lean body mass, and is a prognostic factor for survival in amyotrophic lateral sclerosis - Rafiq - 2016 - European Journal of Neurology - Wiley Online Library According to this...
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