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    Decision about tracheostomy

    I agree with you. With respect to the peg, as I told Pat, I do have it.
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    Decision about tracheostomy

    Pat, I am still struggling. My arms and hands are getting weaker. I had a peg tube installed about one year ago and there was no change in secretions. Are you more decided about the tracheostomy?
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    Stiff neck and shoulders when sleeping.

    I have a regular bed and use a wedge pillow with three pillows on top of it positioned so that my shoulder fits in the gap between two pillows and the head does not bend sideways too much. I sleep on my side to prevent aspiration of secretions. I just got palliative care and there may be an OT...
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    Stuffy nose

    What is a baby aspirator?
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    Stiff neck and shoulders when sleeping.

    Thanks Tillie and Laurie, I will pay more attention to the position of my head while sleeping. The reason I asked about medicines is the fact that even the position seems to contribute, being asleep seems to be the main trigger.
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    Stiff neck and shoulders when sleeping.

    I have a totally paralyzed neck and drop head syndrome. During the day I have to hold my head and I use several things to do that but I don't feel stiffness, numbness or pain. But after falling asleep, shortly after I wake up with that sensation. Some times it is very bad. I don't know What to...
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    Thick secretions in the back of my throat

    Tillie: Neck braces didn't work for me, I built my own device from stuff in my garage. Posted it here: https://www.alsforums.com/forum/tips-tricks-gadgets/32224-probably-better-solution-weak-neck.html Alex
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    Thick secretions in the back of my throat

    Hi Bob, thanks for keeping us posted about your condition and the effect of Botox. I am in a tough situation now. My lung function has been reduced a lot, my secretions make it harder to breath and now I have a "dropped head syndrome" and I my arms are semi-paralyzed. I have been told that I...
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    About Botox injections

    No, I didn't. Thanks Greg, I'll try. Alex
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    About Botox injections

    When everything else fails doctors recommend Botox injections to reduce saliva. My understanding is that Botox does not reduce other secretions coming from the sinuses, or from the lungs. I wonder what your experiences are with it as a PALS or CALS.
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