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  1. lostnsavd

    Yesterday my husband was diagnosed with ALS

    Hi Gregk, Yup! I am a bit ragged after all. Hahahha. I've been taking care of my husband with brochitus for the past 8 days, and didn't realize I was getting run down myself and now I have it. Hahahaha I think hubby's new nickname is going to be 'share'giver. Hehehe I did get a hold of...
  2. lostnsavd

    Yesterday my husband was diagnosed with ALS

    Hey Nikki, Thanks so much for the info. I did call and they have been so nice. Going to schedule a sevice coordinator out to visit us. But, I don't think that is going to happen any time soon. I had to take hubby a week ago to the ER with bronchitus. It has been 8 days now and the...
  3. lostnsavd

    Yesterday my husband was diagnosed with ALS

    Hi, I'm sure this must sound like a dumb/stupid question, but does anyone have the ALS Association phone number? With so much scam, I just want to make sure that I call the correct number. Thanks so much. lostnsavd...
  4. lostnsavd

    Yesterday my husband was diagnosed with ALS

    Thanks so much Kaye, Yeah, I too pray that the SSI issue gets straightened out. We've been living on my pitiful SSD and every little bit helps. Our prayers to you and yours as well. Blessings, lostnsavd...
  5. lostnsavd

    Thank you Lynne, much appreciated.

    Thank you Lynne, much appreciated.
  6. lostnsavd

    Yesterday my husband was diagnosed with ALS

    Hi Lynne, Well, I guess none of us ever expected to wind up in an ALS forum. :) But, I am so thankful for the information and kindness from everyone. I guess this could be called the "ALS Family." Thanks so much. Blessings, lostnsavd....
  7. lostnsavd

    Yesterday my husband was diagnosed with ALS

    Patrick, Thank you so much for your valuable information. I will call them in the morning. Blessings, lostnsavd...
  8. lostnsavd

    Yesterday my husband was diagnosed with ALS

    Hi! My husband had applied for SSI (He is not eligible for SSD because he has not put enough into the system and lacks 3 years). He had been self employed and had a fabrication business. He was refused SSI as we expected. We then hired an attorney out of Georgia who represented him and his...
  9. lostnsavd

    Yesterday my husband was diagnosed with ALS

    Hi Nikki J, So nice to meet you. My husband will be 57 next month. He is not a Vet, so he isn't entitled to those benefits. But you certainly gave me a lot of great information that I needed. Thanks so much. He had already been denied SSI a couple of years ago, then went before the judge...
  10. lostnsavd

    Yesterday my husband was diagnosed with ALS

    Hi Everyone, I am new here and really, I don't know where to begin. My husband was diagnosed yesterday with ALS. He was denied SSI last year at his hearing by the judge and so now it is in appeal and won't be heard until 2015. The hospital where he was diagnosed is a charity hospital and...
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