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  1. lisa g

    Trilogy Replacement

    I have my RT coming out on Friday to replace my trilogy. I have the choice between 2 different models for replacement. One is the Luisa by Lowenstein and the other is a Breas Vivo 45. I was wondering if anyone is using either of these models and how they're working for you.
  2. lisa g

    I cant get comfortable

    I to am finding that it's harder to get comfortable. I used to look forward to going to bed at night, it allowed me to forget about this disease for a couple of hours. Now I dread it because it's harder to get comfortable and I'm waking up in pain. My shoulders are sitting forward in the sockets...
  3. lisa g

    Seven days in the hospital...

    Al, I'm so sorry that you're having to go through this again. I hope that your referral comes through quickly so you can get to the bottom of the problem and get it taken care of.
  4. lisa g

    Seven days in the hospital...

    So sorry that you experienced that. I'm glad that you were able to get relief. Those beds with alarms are annoying for sure when I was in the hospital last year they put that alarm on so I wouldn't get out of bed. I'm glad that you're home.
  5. lisa g

    Lift chair recommendation

    I also have a Golden lift chair and just love it. I've had alot of progression this year and have found it to be a life saver. You can check with your local ALS loaner closet if they might have one. My loaner closet has been such a help providing us with wheelchair ramps and a hoyer lift.
  6. lisa g

    In memory of William Howard Milo (wmilo)

    He will be missed. His courage and unwavering strength will be remembered. My deepest sympathy to his family.
  7. lisa g

    In memory of Marilyn, my wife

    So sorry for your loss Ray, it sounds like Marilyn was a strong woman who had an excellent caregiver.
  8. lisa g

    Alternative Supplements

    AP1967, I buy my supplements through Amazon and use them in capsule form. I haven't had any GI issues. I worked my way up to the current dosages.
  9. lisa g

    Problems with bowel movements

    I'm not sure how mobile everyone is but, I find having a bidet toilet seat helps. The water flow can be used to stimulate the muscles making the urge to have a bm.
  10. lisa g

    Alternative Supplements

    I have taken both Acetyl-L-Carnitine 3,000mg and L-Serine 2,000mg a day for the last 3 years. Has it slowed my progression, it's hard to tell. I've been relatively slow progression but has sped up over the last 2 months.
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