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    One of 'those' days.

    Hi All. I am so sorry I have not been visiting, touching base and offering support. I have been putting one foot in front of the other. After feeling slightly more positive at the 7 month point after losing Iven, I took a nose dive and have been struggling to keep my head above water (gee what's...
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    Still feeling numb... is this normal?

    Ah, Tillie and Laurie, thanks so much for getting in touch. You know just when and how to say the right thing. It is so good to know that I am not alone in feeling this way. Someone said to me that grief is like a bobbing cork... sometimes you're up, sometimes you're down... very true. I had...
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    Still feeling numb... is this normal?

    Hi everyone. I am reaching out because I am feeling so down and wonder whether this is normal. It has been five and a half months since Iven's passing and I still feel so empty and lost. Life goes on and I am busy looking after my girls, the dogs, the house, staying on top of my studies, and I...
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    balancing on the other side

    What a rewarding experience for you, thanks so much for sharing it with us! I remember feeling desperate for information throughout Iven's illness, from someone who I felt truly understood. I am sure that was part of what drew everyone to you that day. That and your shining personality! :-)
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    Now What?

    The recliner was a huge relief to get rid of. Every time I walked down the passage and saw that chair through the doorway I expected to see my Iven there. It was like there was this huge big gaping hole where he was supposed to be. I sold the chair, rearranged the room and bought a couple of...
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    Spreading His Ashes <3

    "I feel alone but not lonely, not happy and not sad, not at peace but not in turmoil." I can so relate to that Barbie. Thank you for sharing your wonderful memorial for Lonny. It sounded absolutely beautiful.
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    Mom is scheduled to go off of vent to pass away

    Hi Lisa, it probably feels really surreal to be in the situation you are in. While it must be so incredibly difficult to be facing the passing of your mother, you are fortunate in that you can plan everything beautifully. My husband, Iven, had Bulbar Palsy ALS for four years (just under three...
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    Father's Day is Rough!

    We went away for the weekend to the last place we travelled with Iven. It is a little town called Clarens surrounded by the Maluti mountains. Breathtaking. The girls and I woke up on Sunday and said a little prayer and happy father's day to their dad. It definitely helped not being at home.
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    Shout out to the past CALS

    The equipment was the first thing I got rid of because it was a reminder of the awfulness of the disease, not my wonderful husband. He always said he wanted to be remembered as he was before he became ill so clearing out the bad memories helped us in the first few weeks after he died. Now five...
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    Best Adaptive Tools

    I agree the baby monitor is a godsend. It was so useful and gave such peace of mind. I wish we had got it sooner.
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